Literature DB >> 29753348

Budgetary Impact and Cost Drivers of Drugs for Rare and Ultrarare Diseases.

Michael Schlander1, Charalabos-Markos Dintsios2, Afschin Gandjour3.   

Abstract

OBJECTIVES: To review recent studies reporting health care expenditures (budgetary impact) for orphan medicinal products (OMPs) in Europe and to contribute to our understanding of the cost drivers of nononcological OMPs by means of an empirical analysis in Germany.
METHODS: A systematic search for relevant studies on rare diseases was conducted in PubMed and Embase (until December 2016). In addition, annual treatment costs of nononcological OMPs in Germany were analyzed with respect to five explanatory variables: total prevalence of disease, prevalence with added benefit, availability of alternative treatments for the same indication, extent/probability of treatment benefit, and evidence for a treatment effect on mortality.
RESULTS: A total of nine studies with specific estimates of the budget impact of OMPs for a total of 11 countries were identified; one study addressed specifically ultrarare diseases. Annual per-capita spending for OMPs ranges from €1.32 in Latvia to €16 in France. Per-patient annual treatment costs vary between €27,811 and €1,647,627 in Germany. On the basis of the German data set, the regression analysis shows that log prevalence has a significant inverse relationship with log annual treatment cost. In this model, doubling the prevalence leads to a 43% decrease in annual treatment cost.
CONCLUSIONS: Despite per-patient annual treatment costs ranging up to several hundreds of thousands of euros for some OMPs, per-capita spending for OMPs is relatively small. In this study an inverse relationship between prevalence and annual treatment costs was found.
Copyright © 2018 International Society for Pharmacoeconomics and Outcomes Research (ISPOR). Published by Elsevier Inc. All rights reserved.

Entities:  

Keywords:  budgetary impact; drug prices; orphan medicinal products; prevalence; rare diseases; ultrarare diseases

Mesh:

Year:  2017        PMID: 29753348     DOI: 10.1016/j.jval.2017.10.015

Source DB:  PubMed          Journal:  Value Health        ISSN: 1098-3015            Impact factor:   5.725


  12 in total

1.  Funding orphan medicinal products beyond price: sustaining an ecosystem.

Authors:  Oriol de Sola-Morales
Journal:  Eur J Health Econ       Date:  2019-12

2.  Determinants of Orphan Drug Prices in Germany.

Authors:  Franziska Worm; Charalabos-Markos Dintsios
Journal:  Pharmacoeconomics       Date:  2020-04       Impact factor: 4.981

3.  Assessing the Preferences for Criteria in Multi-Criteria Decision Analysis in Treatments for Rare Diseases.

Authors:  Carina Schey; Maarten Jacobus Postma; Paul F M Krabbe; Olekdandr Topachevskyi; Andrew Volovyk; Mark Connolly
Journal:  Front Public Health       Date:  2020-05-08

4.  Predictors of negotiated prices for new drugs in Germany.

Authors:  Afschin Gandjour; Sofia Schüßler; Thomas Hammerschmidt; Charalabos-Markos Dintsios
Journal:  Eur J Health Econ       Date:  2020-05-25

5.  Moving Towards Accountability for Reasonableness - A Systematic Exploration of the Features of Legitimate Healthcare Coverage Decision-Making Processes Using Rare Diseases and Regenerative Therapies as a Case Study.

Authors:  Monika Wagner; Dima Samaha; Roman Casciano; Matthew Brougham; Payam Abrishami; Charles Petrie; Bernard Avouac; Lorenzo Mantovani; Antonio Sarría-Santamera; Paul Kind; Michael Schlander; Michele Tringali
Journal:  Int J Health Policy Manag       Date:  2019-07-01

Review 6.  Methodological Quality Assessment of Budget Impact Analyses for Orphan Drugs: A Systematic Review.

Authors:  Khadidja Abdallah; Isabelle Huys; Kathleen Claes; Steven Simoens
Journal:  Front Pharmacol       Date:  2021-04-21       Impact factor: 5.810

7.  Orphan Medicine Incentives: How to Address the Unmet Needs of Rare Disease Patients by Optimizing the European Orphan Medicinal Product Landscape Guiding Principles and Policy Proposals by the European Expert Group for Orphan Drug Incentives (OD Expert Group).

Authors:  Annemieke Aartsma-Rus; Marc Dooms; Yann Le Cam
Journal:  Front Pharmacol       Date:  2021-12-16       Impact factor: 5.810

8.  Projecting Pharmaceutical Expenditure in EU5 to 2021: Adjusting for the Impact of Discounts and Rebates.

Authors:  Jaime Espin; Michael Schlander; Brian Godman; Pippa Anderson; Jorge Mestre-Ferrandiz; Isabelle Borget; Adam Hutchings; Steven Flostrand; Adam Parnaby; Claudio Jommi
Journal:  Appl Health Econ Health Policy       Date:  2018-12       Impact factor: 2.561

9.  Availability, accessibility and delivery to patients of the 28 orphan medicines approved by the European Medicine Agency for hereditary metabolic diseases in the MetabERN network.

Authors:  Jean-Michel Heard; Charlotte Vrinten; Michael Schlander; Cinzia Maria Bellettato; Corine van Lingen; Maurizio Scarpa
Journal:  Orphanet J Rare Dis       Date:  2020-01-06       Impact factor: 4.123

10.  Moving somatic gene editing to the clinic: routes to market access and reimbursement in Europe.

Authors:  Tessel Rigter; David Klein; Stephanie S Weinreich; Martina C Cornel
Journal:  Eur J Hum Genet       Date:  2021-04-14       Impact factor: 4.246

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