Nina Helen Mjøsund1, Hege Forbech Vinje2, Monica Eriksson3, Mette Haaland-Øverby1, Sven Liang Jensen1, Solveig Kjus1, Irene Norheim1, Inger-Lill Portaasen1, Geir Arild Espnes4. 1. Department of Mental Health Research and Development, Vestre Viken Hospital Trust, Drammen, Norway. 2. Department of Health, Social and Welfare Studies, Faculty of Health and Social Sciences, University of South-Eastern Norway, Norway, Kongsberg, Norway. 3. Center on Salutogenesis, Department of Health Sciences, University West, Trollhättan, Sweden. 4. NTNU Center for Health Promotion Research, Norwegian University of Science and Technology, Trondheim, Norway.
Abstract
AIM: The aim was to explore the process of involving mental healthcare service users in a mental health promotion research project as research advisors and to articulate features of the collaboration which encouraged and empowered the advisors to make significant contributions to the research process and outcome. BACKGROUND: There is an increasing interest in evaluating aspects of service user involvement in nursing research. Few descriptions exist of features that enable meaningful service user involvement. We draw on experiences from conducting research which used the methodology interpretative phenomenological analysis to explore how persons with mental disorders perceived mental health. Apart from the participants in the project, five research advisors with service user experience were involved in the entire research process. DESIGN: We applied a case study design to explore the ongoing processes of service user involvement. METHODS: Documents and texts produced while conducting the project (2012-2016), as well as transcripts from multistage focus group discussions with the research advisors, were analysed. RESULTS: The level of involvement was dynamic and varied throughout the different stages of the research process. Six features: leadership, meeting structure, role clarification, being members of a team, a focus on possibilities and being seen and treated as holistic individuals, were guiding principles for a salutogenic service user involvement. These features strengthened the advisors' perception of themselves as valuable and competent contributors. CONCLUSION: Significant contributions from research advisors were promoted by facilitating the process of involvement. A supporting structure and atmosphere were consistent with a salutogenic service user involvement.
AIM: The aim was to explore the process of involving mental healthcare service users in a mental health promotion research project as research advisors and to articulate features of the collaboration which encouraged and empowered the advisors to make significant contributions to the research process and outcome. BACKGROUND: There is an increasing interest in evaluating aspects of service user involvement in nursing research. Few descriptions exist of features that enable meaningful service user involvement. We draw on experiences from conducting research which used the methodology interpretative phenomenological analysis to explore how persons with mental disorders perceived mental health. Apart from the participants in the project, five research advisors with service user experience were involved in the entire research process. DESIGN: We applied a case study design to explore the ongoing processes of service user involvement. METHODS: Documents and texts produced while conducting the project (2012-2016), as well as transcripts from multistage focus group discussions with the research advisors, were analysed. RESULTS: The level of involvement was dynamic and varied throughout the different stages of the research process. Six features: leadership, meeting structure, role clarification, being members of a team, a focus on possibilities and being seen and treated as holistic individuals, were guiding principles for a salutogenic service user involvement. These features strengthened the advisors' perception of themselves as valuable and competent contributors. CONCLUSION: Significant contributions from research advisors were promoted by facilitating the process of involvement. A supporting structure and atmosphere were consistent with a salutogenic service user involvement.
Keywords:
case study design; interpretative phenomenological analysis; mental health nursing; mental health promotion; mental healthcare service users; nursing research; qualitative methodology; salutogenesis; service user involvement