| Literature DB >> 29736796 |
F D Tucker1, J K Morris2, A Neville3, E Garne4, A Kinsner-Ovaskainen5, M Lanzoni5, M A Loane6, S Martin5, C Nicholl5, J Rankin7, A K Rissmann7,8.
Abstract
This paper provides an outline of the development and growth of EUROCAT, the European network of congenital anomaly registers. In recent years the network has been through a period of transition and change. The Central Register of data has transferred from the Ulster University to the EU Joint-Research-Centre, Ispra, Italy.The benefits of combining data from across Europe, from different populations and countries are described by the uses to which these data can be put. These uses include:. surveillance of anomalies at a local, regional or pan-European level. pharmacovigilance. registration of rare diseasesNew studies and projects are underway, including EUROlinkCAT (a Horizon 2020 funded data-linkage project), promising a fruitful future in further research of congenital anomalies.Entities:
Year: 2018 PMID: 29736796 PMCID: PMC6167264 DOI: 10.1007/s12687-018-0367-3
Source DB: PubMed Journal: J Community Genet ISSN: 1868-310X