Mallika Prem Senthil1,2, Jyoti Khadka3,4, John De Roach5,6, Tina Lamey5,6, Terri McLaren5, Isabella Campbell5, Eva K Fenwick7,8,9, Ecosse L Lamoureux7,8,9, Konrad Pesudovs3,4. 1. NHMRC Centre for Clinical Eye Research, Flinders University of South Australia, Adelaide, South Australia, 5001, Australia. prem0013@flinders.edu.au. 2. Optometry and Vision Science, Flinders University of South Australia, Bedford Park, South Australia, 5001, Australia. prem0013@flinders.edu.au. 3. NHMRC Centre for Clinical Eye Research, Flinders University of South Australia, Adelaide, South Australia, 5001, Australia. 4. Optometry and Vision Science, Flinders University of South Australia, Bedford Park, South Australia, 5001, Australia. 5. Department of Medical Technology and Physics, Australian Inherited Retinal Disease Register and DNA Bank (AIRDR), Sir Charles Gairdner Hospital, Nedlands, Western Australia, 6009, Australia. 6. Centre for Ophthalmology and Visual Science, Faculty of Medicine, Dentistry and Health Science, University of Western Australia, Perth, Western Australia, 6009, Australia. 7. Centre for Eye Research Australia, the Royal Victorian Eye, and Ear Hospital, University of Melbourne, Melbourne, Australia. 8. Singapore National Eye Centre, Singapore Eye Research Institute, Singapore, Singapore. 9. Duke-National University of Singapore Medical School, Singapore, Singapore.
Abstract
PURPOSE: Our understanding of the coping strategies used by people with visual impairment to manage stress related to visual loss is limited. This study aims to develop a sophisticated coping instrument in the form of an item bank implemented via Computerised adaptive testing (CAT) for hereditary retinal diseases. METHODS: Items on coping were extracted from qualitative interviews with patients which were supplemented by items from a literature review. A systematic multi-stage process of item refinement was carried out followed by expert panel discussion and cognitive interviews. The final coping item bank had 30 items. Rasch analysis was used to assess the psychometric properties. A CAT simulation was carried out to estimate an average number of items required to gain precise measurement of hereditary retinal disease-related coping. RESULTS: One hundred eighty-nine participants answered the coping item bank (median age = 58 years). The coping scale demonstrated good precision and targeting. The standardised residual loadings for items revealed six items grouped together. Removal of the six items reduced the precision of the main coping scale and worsened the variance explained by the measure. Therefore, the six items were retained within the main scale. Our CAT simulation indicated that, on average, less than 10 items are required to gain a precise measurement of coping. CONCLUSIONS: This is the first study to develop a psychometrically robust coping instrument for hereditary retinal diseases. CAT simulation indicated that on an average, only four and nine items were required to gain measurement at moderate and high precision, respectively.
PURPOSE: Our understanding of the coping strategies used by people with visual impairment to manage stress related to visual loss is limited. This study aims to develop a sophisticated coping instrument in the form of an item bank implemented via Computerised adaptive testing (CAT) for hereditary retinal diseases. METHODS: Items on coping were extracted from qualitative interviews with patients which were supplemented by items from a literature review. A systematic multi-stage process of item refinement was carried out followed by expert panel discussion and cognitive interviews. The final coping item bank had 30 items. Rasch analysis was used to assess the psychometric properties. A CAT simulation was carried out to estimate an average number of items required to gain precise measurement of hereditary retinal disease-related coping. RESULTS: One hundred eighty-nine participants answered the coping item bank (median age = 58 years). The coping scale demonstrated good precision and targeting. The standardised residual loadings for items revealed six items grouped together. Removal of the six items reduced the precision of the main coping scale and worsened the variance explained by the measure. Therefore, the six items were retained within the main scale. Our CAT simulation indicated that, on average, less than 10 items are required to gain a precise measurement of coping. CONCLUSIONS: This is the first study to develop a psychometrically robust coping instrument for hereditary retinal diseases. CAT simulation indicated that on an average, only four and nine items were required to gain measurement at moderate and high precision, respectively.
Authors: Gabrielle D Lacy; Maria Fernanda Abalem; Chris A Andrews; Rebhi Abuzaitoun; Lilia T Popova; Erin P Santos; Gina Yu; Hanan Y Rakine; Natasha Baig; Joshua R Ehrlich; Abigail T Fahim; Kari H Branham; Bonnielin K Swenor; Paul R Lichter; Gislin Dagnelie; Joan A Stelmack; David C Musch; K Thiran Jayasundera Journal: Am J Ophthalmol Date: 2020-12-09 Impact factor: 5.258
Authors: Rose M Gilbert; Dayyanah Sumodhee; Nikolas Pontikos; Catherine Hollyhead; Angus Patrick; Samuel Scarles; Sabrina Van Der Smissen; Rodrigo M Young; Nick Nettleton; Andrew R Webster; Jocelyn Cammack Journal: JMIR Form Res Date: 2022-01-31