Sofia Andersson1, Olav Lindqvist2, Carl-Johan Fürst3, Margareta Brännström4. 1. Registered Nurse, PhD student, Department of Nursing, Umeå University, Umeå, Sweden. 2. Registered Nurse, Senior lecturer, Department of Nursing, Umeå University; Department of Learning, Informatics, Management and Ethics/Division of Innovative Care, Karolinska Institutet, Stockholm, Sweden. 3. Professor, The Institute for Palliative Care, Faculty of Medicine, Department of Clinical Science, Lund University and Region Skåne, Lund, Sweden. 4. Registered Nurse, Associate Professor, Senior lecturer, Department of Nursing, Umeå; The Arctic Research Centre, Umeå University; Institute of Health and Care Sciences, Sahlgrenska Academy, Gothenburg University.
Abstract
BACKGROUND: Residential care homes (RCHs) are increasingly becoming a common place of death for older people. AIM: The aim of this study was to describe family members' experiences of care of the dying in RCHs where the Liverpool care pathway for the dying patient was used. METHODS: This study had a descriptive qualitative study design. Fifteen (n=15) individual interviews were analysed using qualitative content analysis. RESULTS: The analysis resulted in three themes: being confident in a familiar and warm atmosphere, being involved vs not being involved in end-of-life (EoL) care, and being consoled by witnessing the health professional's endeavour to relieve suffering. SIGNIFICANCE OF RESULTS: The results indicated that taking part in a care plan seems to increase family members' feelings of involvement in EoL care. This study also highlights the family members' needs for increased possibilities for EoL discussions with the GP.
BACKGROUND: Residential care homes (RCHs) are increasingly becoming a common place of death for older people. AIM: The aim of this study was to describe family members' experiences of care of the dying in RCHs where the Liverpool care pathway for the dying patient was used. METHODS: This study had a descriptive qualitative study design. Fifteen (n=15) individual interviews were analysed using qualitative content analysis. RESULTS: The analysis resulted in three themes: being confident in a familiar and warm atmosphere, being involved vs not being involved in end-of-life (EoL) care, and being consoled by witnessing the health professional's endeavour to relieve suffering. SIGNIFICANCE OF RESULTS: The results indicated that taking part in a care plan seems to increase family members' feelings of involvement in EoL care. This study also highlights the family members' needs for increased possibilities for EoL discussions with the GP.
Entities:
Keywords:
Clinical intervention; End of life; Family members; Liverpool care pathway; Nursing home
Authors: Maartje S Klapwijk; Natashe Lemos Dekker; Monique A A Caljouw; Wilco P Achterberg; Jenny T van der Steen Journal: BMC Palliat Care Date: 2020-11-30 Impact factor: 3.234