Literature DB >> 29676215

Being and Becoming a Helper: Illness Disclosure and Identity Transformations among Indigenous People Living With HIV or AIDS in Saskatoon, Saskatchewan.

Andrew R Hatala1, Kelley Bird-Naytowhow2, Tamara Pearl2, Jen Peterson3, Sugandhi Del Canto4, Eddie Rooke5, Stryker Calvez2, Ryan Meili2,4,5, Michael Schwandt2,4, Jason Mercredi6, Patti Tait3.   

Abstract

Saskatoon has nearly half of the diagnoses of HIV in Saskatchewan, Canada, with an incidence rate among Indigenous populations within inner-city contexts that is 3 times higher than national rates. Previous research does not adequately explore the relations between HIV vulnerabilities within these contexts and the experiences of illness disclosure that are informed by identity transformations, experiences of stigma, and social support. From an intersectionality framework and a constructivist grounded theory approach, this research involved in-depth, semistructured interviews with 21 Indigenous people living with HIV and/or AIDS in Saskatoon, both male and female. In this article, we present the key themes that emerged from the interviews relating to experiences of HIV disclosure, including experiences of and barriers to the disclosure process. In the end, we highlight the important identity transformation and role of being and becoming a "helper" in the community and how it can be seen as a potential support for effective community health interventions.

Entities:  

Keywords:  HIV or AIDS; Indigenous; Saskatchewan; Saskatoon; constructivist grounded theory; identity; illness disclosure; intersectionality; morality; power; stigma

Mesh:

Year:  2018        PMID: 29676215     DOI: 10.1177/1049732318764394

Source DB:  PubMed          Journal:  Qual Health Res        ISSN: 1049-7323


  3 in total

1.  "They look at you like you're contaminated": how HIV-related stigma shapes access to care for incarcerated women living with HIV in a Canadian setting.

Authors:  Margaret Erickson; Kate Shannon; Flo Ranville; Sherri Pooyak; Terry Howard; Bronwyn McBride; Neora Pick; Ruth Elwood Martin; Andrea Krüsi
Journal:  Can J Public Health       Date:  2021-09-01

2.  A cross-cultural adaptation and validation of a scale to assess illness identity in adults living with a chronic illness in South Africa: a case of HIV.

Authors:  Neo Phyllis Sematlane; Lucia Knight; Caroline Masquillier; Edwin Wouters
Journal:  AIDS Res Ther       Date:  2022-08-21       Impact factor: 2.846

3.  Participatory design and qualitative evaluation of a decision guide for workplace human immunodeficiency virus self-disclosure: The importance of a socio-ecological perspective.

Authors:  Gayle Restall; Francis Diaz; Patrick Faucher; Kerstin Roger
Journal:  Health Expect       Date:  2021-05-04       Impact factor: 3.377

  3 in total

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