Literature DB >> 29655528

A mobile app for patients with Pompe disease and its possible clinical applications.

Giulia Ricci1, Sigrid Baldanzi1, Fabrizio Seidita2, Chiara Proietti3, Francesca Carlini3, Silvia Peviani3, Giovanni Antonini4, Andrea Vianello5, Gabriele Siciliano6.   

Abstract

In recent years, the potential of smart technology to provide innovative solutions for disease management has raised high expectations for patients' and healthcare professionals' community. We developed a mobile app, called AIGkit, specifically designed for adult patients with Pompe disease, with the aim to help them manage the burden of illness-related factors, and also to provide clinicians with continuous tracking of each patient in real-time and ambient conditions of everyday life. We present the AIGkit as an innovative approach exploiting cutting-edge technology to improve quality of care and research into neuromuscular disorders.
Copyright © 2018 Elsevier B.V. All rights reserved.

Entities:  

Keywords:  Glycogen storage disease type II; Pompe disease; Smart technology; e-Health

Mesh：

Year:  2018        PMID： 29655528     DOI： 10.1016/j.nmd.2018.03.005

Source DB:  PubMed          Journal:  Neuromuscul Disord        ISSN： 0960-8966            Impact factor:   4.296


  6 in total

1.  A mobile app for Glaucoma diagnosis and its possible clinical applications.

Authors:  Fan Guo; Weiqing Li; Xin Zhao; Junfeng Qiu; Yuxiang Mai
Journal:  BMC Med Inform Decis Mak       Date:  2020-07-09       Impact factor: 2.796

2.  Evaluation of E-Health Applications for Paediatric Patients with Refractory Epilepsy and Maintained on Ketogenic Diet.

Authors:  Anna-Maria Costa; Maddalena Marchiò; Giulia Bruni; Silvia Maria Bernabei; Silvia Cavalieri; Marina Bondi; Giuseppe Biagini
Journal:  Nutrients       Date:  2021-04-09       Impact factor: 5.717

3.  Adaptation of TECCU App Based on Patients´ Perceptions for the Telemonitoring of Inflammatory Bowel Disease: A Qualitative Study Using Focus Groups.

Authors:  Javier Del Del Hoyo; Pilar Nos; Raquel Faubel; Guillermo Bastida; Diana Muñoz; Elena Valero-Pérez; Alejandro Garrido-Marín; Pablo Bella; Beatriz Peña; Claudia Savini; Mariam Aguas
Journal:  Int J Environ Res Public Health       Date:  2020-03-13       Impact factor: 3.390

Review 4.  Practical approach to respiratory emergencies in neurological diseases.

Authors:  Fabrizio Racca; Andrea Vianello; Tiziana Mongini; Paolo Ruggeri; Antonio Versaci; Gian Luca Vita; Giuseppe Vita
Journal:  Neurol Sci       Date:  2019-12-02       Impact factor: 3.307

Review 5.  Telemedicine for management of patients with amyotrophic lateral sclerosis through COVID-19 tail.

Authors:  Alessandro Bombaci; Gianmarco Abbadessa; Francesca Trojsi; Letizia Leocani; Simona Bonavita; Luigi Lavorgna
Journal:  Neurol Sci       Date:  2020-10-06       Impact factor: 3.307

6.  E-Health & Innovation to Overcome Barriers in Neuromuscular Diseases. Report from the 1st eNMD Congress: Nice, France, March 22-23, 2019.

Authors:  Jonathan Pini; Gabriele Siciliano; Pauline Lahaut; Serge Braun; Sandrine Segovia-Kueny; Anna Kole; Ines Hérnando; Julij Selb; Erika Schirinzi; Tina Duong; Jean-Yves Hogrel; José Javier Serrano Olmedo; John Vissing; Laurent Servais; Dominique Vincent-Genod; Carole Vuillerot; Sylvie Bannwarth; Damien Eggenspieler; Savine Vicart; Jordi Diaz-Manera; Hanns Lochmüller; Sabrina Sacconi
Journal:  J Neuromuscul Dis       Date:  2021
  6 in total

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