Literature DB >> 29652654

Patients with juvenile idiopathic arthritis become adults: the role of transitional care.

Fabrizio Conti1, Irene Pontikaki2, Mariella D'Andrea3, Angelo Ravelli4, Fabrizio De Benedetti5.   

Abstract

Most juvenile idiopathic arthritis (JIA) patients need to attend adult rheumatology centres to continue the clinical management of their disease and to receive adequate long-term treatment. Transition from the paediatric to the adult health care team is a critical moment in the clinical history of these patients, but unfortunately, about 50% of the transfer processes to adult rheumatology are not successful, putting these patients at high risk of unfavourable outcomes. There are several obstacles to the success of transitional care for JIA patients, such as the absence of specific criteria for the assessment of disease activity, the lack of specific treatment recommendations for JIA adult patients, the poor adolescent-specific training for adult rheumatologists, and the shortage of resources. The improvement in the transition process in medical care has become a priority in many health care systems, but not many studies evaluating transition models, and common methodologies for measuring transition outcomes are available. The aim of this review is to identify and describe the models of transitional care in JIA, providing insights and recommendations to develop effective transitional care models in this disease.

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Mesh:

Year:  2018        PMID: 29652654

Source DB:  PubMed          Journal:  Clin Exp Rheumatol        ISSN: 0392-856X            Impact factor:   4.473


  5 in total

1.  The Term "Juvenile Idiopathic Arthritis (JIA)" is Misleading. It Will not be Sufficient to Just Replace this Term.

Authors:  Klaus Rose; Oishi Tanjinatus; Earl B Ettienne
Journal:  Pharmaceut Med       Date:  2021-05

2.  [Clinical characteristics and biological treatment of adult patient with juvenile idiopathic arthritis].

Authors:  S X Wei; S J Li; Y Liu
Journal:  Beijing Da Xue Xue Bao Yi Xue Ban       Date:  2020-12-18

3.  Transition of patients with mucopolysaccharidosis from paediatric to adult care.

Authors:  C Lampe; B McNelly; A K Gevorkian; C J Hendriksz; T V Lobzhanidze; J Pérez-López; K M Stepien; N D Vashakmadze; M Del Toro
Journal:  Mol Genet Metab Rep       Date:  2019-10-21

4.  Transitioning patients with juvenile idiopathic arthritis to adult care: the Nordic experience.

Authors:  Katriina Mikola; Katariina Rebane; Ellen Dalen Arnstad; Lillemor Berntson; Anders Fasth; Mia Glerup; Troels Herlin; Hannu Kautiainen; Susan Nielsen; Ellen Nordal; Suvi Peltoniemi; Marite Rygg; Veronika Rypdal; Marek Zak; Kristiina Aalto
Journal:  Pediatr Rheumatol Online J       Date:  2022-10-01       Impact factor: 3.413

5.  Importance of pediatric rheumatologists and transitional care for juvenile idiopathic arthritis-associated uveitis: a retrospective series of 9 cases.

Authors:  Susumu Yamazaki; Asami Shimbo; Yuko Akutsu; Hiroshi Takase; Tomohiro Morio; Masaaki Mori
Journal:  Pediatr Rheumatol Online J       Date:  2020-03-23       Impact factor: 3.054

  5 in total

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