Literature DB >> 29642272

"You don't look for it"-A study of Swiss professionals' awareness of young carers and their support needs.

Agnes Leu1, Marianne Frech1, Corinna Jung1,2.   

Abstract

While political and public interest in providing support for family carers is growing, so called young carers and young adult carers-young persons under the ages of 18 and 25 respectively-mostly remain unrecognised. Yet, this vulnerable group is in need of special attention and support from professionals in order to get along with the situation of an ill family member and the caring duties they perform. This paper presents the results from a focus group study on the level of awareness among professionals from healthcare, education and social services concerning the topic of caring children, adolescents and young adults; and on the practice tools they consider necessary and helpful in order to support young carers and young adult carers. Twenty-seven professionals from the German- and French-speaking parts of Switzerland participated in five focus groups. The focus groups were recorded and transcribed verbatim, and the transcripts were analysed using qualitative content analysis. Our findings show that the professionals have a low level of awareness of the issue of young carers and young adult carers and also highlight the professionals' willingness to engage with the subject. The results also show that professionals consider that practice tools (such as standardised questionnaires and check lists) could be important devices in providing support for young carers and young adult carers. These tools could be helpful in identifying this group, enabling them to identify themselves as such, and would ensure that they received appropriate support.
© 2018 John Wiley & Sons Ltd.

Entities:  

Keywords:  awareness; focus groups; practice tools; young adult carers; young carers

Mesh:

Year:  2018        PMID: 29642272     DOI: 10.1111/hsc.12574

Source DB:  PubMed          Journal:  Health Soc Care Community        ISSN: 0966-0410


  8 in total

Review 1.  The Young Carers' Journey: A Systematic Review and Meta Ethnography.

Authors:  Marianne Saragosa; Melissa Frew; Shoshana Hahn-Goldberg; Ani Orchanian-Cheff; Howard Abrams; Karen Okrainec
Journal:  Int J Environ Res Public Health       Date:  2022-05-10       Impact factor: 4.614

Review 2.  Are there young carers in oncology? A systematic review.

Authors:  Pauline Justin; Kristopher Lamore; Géraldine Dorard; Aurélie Untas
Journal:  Psychooncology       Date:  2021-05-16       Impact factor: 3.955

3.  Invisible population: Understanding recruitment barriers of a nurse-led support programme for families with caregiving children in Austria.

Authors:  Martin Nagl-Cupal; Julia Hauprich
Journal:  Nurs Open       Date:  2020-04-16

4.  The Burden of Care: A National Survey on the Prevalence, Demographic Characteristics and Health Problems Among Young Adult Carers Attending Higher Education in Norway.

Authors:  Bente Storm Mowatt Haugland; Mari Hysing; Børge Sivertsen
Journal:  Front Psychol       Date:  2020-01-23

5.  The emotional and mental health needs of young carers: what psychiatry can do.

Authors:  Roswitha Dharampal; Cornelius Ani
Journal:  BJPsych Bull       Date:  2020-06

6.  Study progress, recreational activities, and loneliness in young adult carers: a national student survey.

Authors:  Bente Storm Mowatt Haugland; Mari Hysing; Børge Sivertsen
Journal:  BMC Psychol       Date:  2022-02-26

7.  The awareness, visibility and support for young carers across Europe: a Delphi study.

Authors:  Henk Herman Nap; Renske Hoefman; Nynke de Jong; Lieke Lovink; Ludo Glimmerveen; Feylyn Lewis; Sara Santini; Barbara D'Amen; Marco Socci; Licia Boccaletti; Giulia Casu; Alessandra Manattini; Rosita Brolin; Karina Sirk; Valentina Hlebec; Tatjana Rakar; Tjasa Hudobivnik; Agnes Leu; Fabian Berger; Lennart Magnusson; Elizabeth Hanson
Journal:  BMC Health Serv Res       Date:  2020-10-07       Impact factor: 2.655

Review 8.  Growing up with a Chronically Ill Family Member-The Impact on and Support Needs of Young Adult Carers: A Scoping Review.

Authors:  Hinke M van der Werf; Marie Louise A Luttik; Alice de Boer; Petrie F Roodbol; Wolter Paans
Journal:  Int J Environ Res Public Health       Date:  2022-01-13       Impact factor: 3.390

  8 in total

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