Literature DB >> 29633852

Implementing systems-based innovations to improve access to early screening, diagnosis, and treatment services for children with autism spectrum disorder: An Autism Spectrum Disorder Pediatric, Early Detection, Engagement, and Services network study.

Sarabeth Broder Fingert1, Alice Carter2, Karen Pierce3, Wendy L Stone4, Amy Wetherby5, Chris Scheldrick6, Christopher Smith7, Elizabeth Bacon3, Stephen N James7, Lisa Ibañez4, Emily Feinberg8.   

Abstract

In 2013, the National Institute of Mental Health funded five trials of unique, multicomponent, systems-based innovations designed to improve access to early screening, diagnosis, and treatment of autism spectrum disorder-collectively known as the Autism Spectrum Disorder Pediatric, Early Detection, Engagement, and Services Network. As part of an ongoing effort to pool data and learn from shared experience, we collected information across all studies about innovation components and implementation strategies. First, each study group completed standardized checklists based on the Template for Intervention Description and Replication and the Expert Recommendation for Implementing Change. Then, we interviewed principal and co-investigators of each study (n = 9) to further explore innovation components and assess barriers and facilitators to implementation. Innovation strategies were diverse (five different autism spectrum disorder screeners were used, 40% included early intervention trainings, 60% involved new technology). Common implementation strategies included developing stakeholder relationships and provider trainings. Barriers included inefficient systems of care, difficulty engaging families in the innovations, provider attitudes, and organizational culture (e.g. difficulty changing clinic processes). These findings suggest that-despite diverse settings and a variety of innovation content-common facilitators and challenges exist in implementing innovations to enhance access to early autism spectrum disorder screening, diagnosis, and treatment.

Entities:  

Keywords:  autism; early intervention; implementation

Mesh:

Year:  2018        PMID: 29633852      PMCID: PMC6167204          DOI: 10.1177/1362361318766238

Source DB:  PubMed          Journal:  Autism        ISSN: 1362-3613


  52 in total

1.  Barriers to autism screening in family medicine practice: a qualitative study.

Authors:  Tsehaiwork Sunny Fenikilé; Kathryn Ellerbeck; Melissa K Filippi; Christine M Daley
Journal:  Prim Health Care Res Dev       Date:  2014-11-04       Impact factor: 1.458

Review 2.  Autism Behavioural Interventional Research in low-resource settings: Overcoming prevailing challenges - an Asian perspective.

Authors:  M Harshini; K Preeti
Journal:  Asian J Psychiatr       Date:  2016-12-07

3.  ACC/AHA Special Report: Clinical Practice Guideline Implementation Strategies: A Summary of Systematic Reviews by the NHLBI Implementation Science Work Group: A Report of the American College of Cardiology/American Heart Association Task Force on Clinical Practice Guidelines.

Authors:  Wiley V Chan; Thomas A Pearson; Glen C Bennett; William C Cushman; Thomas A Gaziano; Paul N Gorman; Joel Handler; Harlan M Krumholz; Robert F Kushner; Thomas D MacKenzie; Ralph L Sacco; Sidney C Smith; Victor J Stevens; Barbara L Wells
Journal:  J Am Coll Cardiol       Date:  2017-01-26       Impact factor: 24.094

4.  'You are labelled by your children's disability' - A community-based, participatory study of stigma among Somali parents of children with autism living in the United Kingdom.

Authors:  Lucy Ellen Selman; Fiona Fox; Nura Aabe; Katrina Turner; Dheeraj Rai; Sabi Redwood
Journal:  Ethn Health       Date:  2017-03-02       Impact factor: 2.772

5.  A Scoping Review of Health Disparities in Autism Spectrum Disorder.

Authors:  Lauren Bishop-Fitzpatrick; Amy J H Kind
Journal:  J Autism Dev Disord       Date:  2017-11

6.  Predicting young adult outcome among more and less cognitively able individuals with autism spectrum disorders.

Authors:  Deborah K Anderson; Jessie W Liang; Catherine Lord
Journal:  J Child Psychol Psychiatry       Date:  2013-12-09       Impact factor: 8.982

7.  Randomized, controlled trial of an intervention for toddlers with autism: the Early Start Denver Model.

Authors:  Geraldine Dawson; Sally Rogers; Jeffrey Munson; Milani Smith; Jamie Winter; Jessica Greenson; Amy Donaldson; Jennifer Varley
Journal:  Pediatrics       Date:  2009-11-30       Impact factor: 7.124

8.  Challenges to implementation of developmental screening in urban primary care: a mixed methods study.

Authors:  Deanna L Morelli; Susmita Pati; Anneliese Butler; Nathan J Blum; Marsha Gerdes; Jennifer Pinto-Martin; James P Guevara
Journal:  BMC Pediatr       Date:  2014-01-21       Impact factor: 2.125

9.  Developing the Autism Model of Implementation for autism spectrum disorder community providers: study protocol.

Authors:  Amy Drahota; Gregory A Aarons; Aubyn C Stahmer
Journal:  Implement Sci       Date:  2012-09-10       Impact factor: 7.327

10.  Implementation strategies: recommendations for specifying and reporting.

Authors:  Enola K Proctor; Byron J Powell; J Curtis McMillen
Journal:  Implement Sci       Date:  2013-12-01       Impact factor: 7.327

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  7 in total

1.  Multi-method process maps: An interdisciplinary approach to investigate ad hoc modifications in protocol-driven interventions.

Authors:  Thomas I Mackie; Leah Ramella; Ana J Schaefer; Monica Sridhar; Alice S Carter; Abbey Eisenhower; Grace T Ibitamuno; Marisa Petruccelli; Shawna V Hudson; R Christopher Sheldrick
Journal:  J Clin Transl Sci       Date:  2020-02-26

2.  Problems in treatment and training of autistic children growing up in China: A follow-up case report.

Authors:  Fuquan Liu; Shijie Liu; Jiabao Chai
Journal:  Pediatr Investig       Date:  2020-06-24

3.  A Taxonomy of Reported Harms in Pediatric Autism Spectrum Disorder Screening: Provider and Parent Perspectives.

Authors:  Marisa Petruccelli; Leah Ramella; Ana J Schaefer; R Christopher Sheldrick; Alice S Carter; Abbey Eisenhower; Sarabeth Broder-Fingert; Thomas I Mackie
Journal:  J Autism Dev Disord       Date:  2021-03-22

4.  Evaluation of the Diagnostic Stability of the Early Autism Spectrum Disorder Phenotype in the General Population Starting at 12 Months.

Authors:  Karen Pierce; Vahid H Gazestani; Elizabeth Bacon; Cynthia Carter Barnes; Debra Cha; Srinivasa Nalabolu; Linda Lopez; Adrienne Moore; Sunny Pence-Stophaeros; Eric Courchesne
Journal:  JAMA Pediatr       Date:  2019-06-01       Impact factor: 16.193

5.  The influence of choline treatment on behavioral and neurochemical autistic-like phenotype in Mthfr-deficient mice.

Authors:  Galila Agam; Zoe Taylor; Ella Vainer; Hava M Golan
Journal:  Transl Psychiatry       Date:  2020-09-18       Impact factor: 6.222

6.  Characterizing Available Tools for Synchronous Virtual Assessment of Toddlers with Suspected Autism Spectrum Disorder: A Brief Report.

Authors:  Natalie I Berger; Allison L Wainer; Jocelyn Kuhn; Karen Bearss; Shana Attar; Alice S Carter; Lisa V Ibanez; Brooke R Ingersoll; Hannah Neiderman; Sabine Scott; Wendy L Stone
Journal:  J Autism Dev Disord       Date:  2021-02-19

7.  Supervised Approach to Identify Autism Spectrum Neurological Disorder via Label Distribution Learning.

Authors:  N V L M Krishna Munagala; V Saravanan; Firas Husham Almukhtar; Naveed Jhamat; Nadeem Kafi; Samiullah Khan
Journal:  Comput Intell Neurosci       Date:  2022-08-27
  7 in total

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