Literature DB >> 29633698

If you want to understand what it really means to live with cluster headache, imagine... fostering empathy through European patients' own stories of their experiences.

Paolo Rossi, P Little, E R De La Torre, A Palmaro.   

Abstract

Cluster headache (CH) is arguably the most severe pain condition that afflicts humans. The severity of the pain has earned it the nickname "suicide headache". Understanding how CH impacts on those who suffer from it is essential, because this understanding creates empathy, which is so valuable to these patients. On the occasion of Cluster Headache Day 2017, we asked CH patients from different European countries to share their experiences, in order to help people to imagine what it means to live with the condition. Here, we look at some extracts from their stories. These CH patients' direct accounts provide an important illustration of the clinical features and consequences of the disease, helping to contextualise it and its psychological and social consequences. Reports of CH patients' first-person accounts might help to underline the physicians' role and responsibility with regard to the psychological and social consequences of this disease.

Entities:  

Mesh:

Year:  2018        PMID: 29633698      PMCID: PMC5901943          DOI: 10.11138/fneur/2018.33.1.057

Source DB:  PubMed          Journal:  Funct Neurol        ISSN: 0393-5264


  12 in total

1.  Cluster headache in the United States of America: demographics, clinical characteristics, triggers, suicidality, and personal burden.

Authors:  Todd D Rozen; Royce S Fishman
Journal:  Headache       Date:  2011-11-11       Impact factor: 5.887

2.  Living With Cluster Headache: A Qualitative Study of Patients' Perspectives.

Authors:  Domingo Palacios-Ceña; Blanca Talavera; Pedro López-Ruiz; Álvaro Gutiérrez-Viedma; María Palacios-Ceña; José A Arias; César Fernández-de-Las-Peñas; María L Cuadrado
Journal:  Headache       Date:  2016-07       Impact factor: 5.887

3.  Health-related quality of life in patients with cluster headache during active periods.

Authors:  D D'Amico; A Rigamonti; A Solari; M Leone; S Usai; L Grazzi; G Bussone
Journal:  Cephalalgia       Date:  2002-12       Impact factor: 6.292

4.  Impairment in episodic and chronic cluster headache.

Authors:  Tim P Jürgens; Charly Gaul; Andrea Lindwurm; Thomas Dresler; Yvonne Paelecke-Habermann; Tobias Schmidt-Wilcke; Ralf Lürding; Karsten Henkel; Elke Leinisch
Journal:  Cephalalgia       Date:  2010-12-01       Impact factor: 6.292

5.  Treatment costs and indirect costs of cluster headache: A health economics analysis.

Authors:  Charly Gaul; Julia Finken; Janine Biermann; Sarah Mostardt; Hans-Christoph Diener; Oliver Müller; Jürgen Wasem; Anja Neumann
Journal:  Cephalalgia       Date:  2011-10-12       Impact factor: 6.292

6.  Burden of cluster headache.

Authors:  R M Jensen; A Lyngberg; R H Jensen
Journal:  Cephalalgia       Date:  2007-04-25       Impact factor: 6.292

7.  Cluster headache is associated with an increased risk of depression: a nationwide population-based cohort study.

Authors:  Jen-Feng Liang; Yung-Tai Chen; Jong-Ling Fuh; Szu-Yuan Li; Chia-Jen Liu; Tzeng-Ji Chen; Chao-Hsiun Tang; Shuu-Jiun Wang
Journal:  Cephalalgia       Date:  2012-12-04       Impact factor: 6.292

8.  Features involved in the diagnostic delay of cluster headache.

Authors:  J A van Vliet; P J E Eekers; J Haan; M D Ferrari
Journal:  J Neurol Neurosurg Psychiatry       Date:  2003-08       Impact factor: 10.154

Review 9.  Expanding clinical empathy: an activist perspective.

Authors:  Rebecca Garden
Journal:  J Gen Intern Med       Date:  2008-11-18       Impact factor: 5.128

10.  Diagnostic and therapeutic errors in cluster headache: a hospital-based study.

Authors:  Cristina Voiticovschi-Iosob; Marta Allena; Ilaria De Cillis; Giuseppe Nappi; Ottar Sjaastad; Fabio Antonaci
Journal:  J Headache Pain       Date:  2014-09-01       Impact factor: 7.277

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