Monica Eneriz-Wiemer1, Shih-Dun Liu2, Michael C Y Chu3, Tarsicio Uribe-Leitz4, Krishna Rajani5, Meera Sankar6, Shira L Robbins7, Henry C Lee8, Claire Woodard9, C Jason Wang10. 1. Department of Pediatrics, Palo Alto Medical Foundation, Los Gatos, California, USA; Division of General Pediatrics, Stanford University School of Medicine, Stanford, California, USA. Electronic address: EnerizMV@sutterhealth.org. 2. University of Pittsburgh School of Medicine, Pittsburgh, Pennsylvania, USA. 3. Duke-NUS Medical School, Singapore. 4. Department of Surgery, Stanford University Medical Center, Stanford, California, USA. 5. Department of Pediatrics, University of California San Francisco-Fresno Education Program, Fresno, California, USA; California Regional Medical Center, Fresno, California, USA. 6. Good Samaritan Hospital, San Jose, California, USA, Mednax National Medical Group. 7. Ratner Children's Eye Center at the Shiley Eye Institute, University of California San Diego, San Diego, California, USA. 8. Division of Neonatal and Developmental Medicine, Stanford University School of Medicine, Stanford, California, USA; California Perinatal Quality Care Collaborative, Stanford, California, USA. 9. Division of General Pediatrics, Stanford University School of Medicine, Stanford, California, USA. 10. Division of General Pediatrics, Stanford University School of Medicine, Stanford, California, USA; Center for Policy, Outcomes, and Prevention, Stanford University School of Medicine, Stanford, California, USA.
Abstract
PURPOSE: Retinopathy of prematurity (ROP) may cause visual impairment in infants with very low birth weight. Lack of parent knowledge may contribute to gaps in screening and treatment. We studied parents' knowledge and education of ROP. DESIGN: Cross-sectional study. METHODS: Setting: Four high-acuity neonatal intensive care units in California (40-84 beds). PARTICIPANTS: Total of 194 English- and Spanish-speaking parents of very low birth weight (<1500 grams) infants recruited from September 2013 to April 2015. MAIN OUTCOME MEASURES: We asked parents what they knew about ROP, how they were educated about ROP, and their experiences obtaining outpatient eye care. We used multivariate analysis to assess whether parent knowledge was associated with level of English proficiency and literacy, education modality (verbal, written, online, video), and hospital transfer status. RESULTS: Of the 194 participants, 131 (68%) completed surveys: 18% had both limited English proficiency and low literacy while overall 26% had limited English proficiency and 37% had low literacy; 17% did not know that ROP is an eye disease, and 38% did not know that very low birth weight and prematurity are both risk factors for ROP. Parents reported receiving verbal (62%) or written (56%) information; few used online resources (12%) or videos (3%). Half reported receiving information about infants' retinopathy status at discharge. No education modality was associated with higher knowledge. Limited English proficiency and low literacy were associated with lower knowledge (vs English-proficient, literate). CONCLUSIONS: Parents of infants with very low birth weight, particularly those with limited English proficiency and low health literacy, lack knowledge about ROP.
PURPOSE:Retinopathy of prematurity (ROP) may cause visual impairment in infants with very low birth weight. Lack of parent knowledge may contribute to gaps in screening and treatment. We studied parents' knowledge and education of ROP. DESIGN: Cross-sectional study. METHODS: Setting: Four high-acuity neonatal intensive care units in California (40-84 beds). PARTICIPANTS: Total of 194 English- and Spanish-speaking parents of very low birth weight (<1500 grams) infants recruited from September 2013 to April 2015. MAIN OUTCOME MEASURES: We asked parents what they knew about ROP, how they were educated about ROP, and their experiences obtaining outpatient eye care. We used multivariate analysis to assess whether parent knowledge was associated with level of English proficiency and literacy, education modality (verbal, written, online, video), and hospital transfer status. RESULTS: Of the 194 participants, 131 (68%) completed surveys: 18% had both limited English proficiency and low literacy while overall 26% had limited English proficiency and 37% had low literacy; 17% did not know that ROP is an eye disease, and 38% did not know that very low birth weight and prematurity are both risk factors for ROP. Parents reported receiving verbal (62%) or written (56%) information; few used online resources (12%) or videos (3%). Half reported receiving information about infants' retinopathy status at discharge. No education modality was associated with higher knowledge. Limited English proficiency and low literacy were associated with lower knowledge (vs English-proficient, literate). CONCLUSIONS: Parents of infants with very low birth weight, particularly those with limited English proficiency and low health literacy, lack knowledge about ROP.
Authors: Hani B Albalawi; Faris Hashem; Amal Nafea J Alharbi; Naif M Alali; Wejdan Mohammed S Alshehri; Abdulrahman Arshed N Alharfy; Abdulmajeed Mousa M Alzahrani; Nouf Mohammed A Albalawi; Moustafa S Magliyah; Saad H Alenezi Journal: J Multidiscip Healthc Date: 2022-01-20
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Authors: Monica Eneriz-Wiemer; Lee M Sanders; Mary McIntyre; Fernando S Mendoza; D Phuong Do; C Jason Wang Journal: Int J Environ Res Public Health Date: 2018-07-25 Impact factor: 3.390