Literature DB >> 29614879

The complexities of contagion: The experience of social isolation among children and youth living with cystic fibrosis in Canada.

Fiona Moola1.   

Abstract

While cross-respiratory infection guidelines reduce the risk of infection, this may have deleterious impacts on the socialization skills of young people living with cystic fibrosis (CF). The purpose of this study was to explore the experience of social isolation among young Canadians with CF, as well as how they navigate these complex contamination restrictions. The thematic analytic qualitative research tradition was adopted and social theories of risk provided theoretical grounding. The youth described a pressing sense of social isolation in their everyday lives. Although most of the youth 'obeyed' the cross-contamination guidelines, some demonstrated a more carefree attitude. Social media was employed across the group as a tool to reduce isolation. In accordance with the sociology of risk, youth with CF demonstrate sophisticated decision-making abilities, navigating exceedingly difficult choices to preserve an always-precarious future. While necessary, cross-contamination guidelines might further marginalize an already isolated group of children and youth.

Entities:  

Keywords:  Children; cross-contamination restrictions; cystic fibrosis; social isolation; social media; youth

Mesh:

Year:  2018        PMID: 29614879     DOI: 10.1177/1367493518767784

Source DB:  PubMed          Journal:  J Child Health Care        ISSN: 1367-4935            Impact factor:   1.979


  3 in total

1.  Adapting the James Lind Alliance priority setting process to better support patient participation: an example from cystic fibrosis.

Authors:  N J Rowbotham; S J Smith; Z C Elliott; P A Leighton; O C Rayner; R Morley; A R Smyth
Journal:  Res Involv Engagem       Date:  2019-08-20

2.  The lived experience of adults with cystic fibrosis: what they would tell their younger selves about the gut.

Authors:  L Cave; L J Milnes
Journal:  J Hum Nutr Diet       Date:  2019-11-25       Impact factor: 3.089

3.  Living with cystic fibrosis during the COVID-19 pandemic: a social connectedness perspective.

Authors:  Maggie Harrigan; Kellie Bennett; Siobhain Mulrennan; Melanie Jessup
Journal:  Int J Qual Stud Health Well-being       Date:  2022-12
  3 in total

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