Elizabeth A Karp1, Rebecca Dudovitz2, Bergen B Nelson3, Wendy Shih4, Amanda Gulsrud4, Felice Orlich5, Costanza Colombi6, Alice A Kuo2,7. 1. Department of Psychology, University of Washington, Seattle, Washington; ekarp@uw.edu. 2. Department of Pediatrics and Children's Discovery & Innovation Institute, David Geffen School of Medicine at UCLA and UCLA Mattel Children's Hospital. 3. Children's Hospital of Richmond and Virginia Commonwealth University, Richmond, Virginia. 4. Center for Autism Research and Treatment, and. 5. Seattle Children's Hospital Autism Center, Seattle, Washington; and. 6. Department of Psychiatry, University of Michigan, Ann Arbor, Michigan. 7. Department of Medicine, University of California, Los Angeles, Los Angeles, California.
Abstract
OBJECTIVES:Parents of children with autism spectrum disorder (ASD) face competing demands when caring for their child and fulfilling family commitments. It remains unknown whether family obligations and parental stress might decrease the use of intervention services for young children with ASD. METHODS: The current study is a secondary analysis of baseline date from a published randomized control trial with 147 low-resourced caregiver-child dyads. Demographic information, data on service use, maternal employment, parent's perception of their child's development, and parental stress were collected for primary caregivers of 2- to 5-year-old children with ASD from 5 sites. Multiple logistic regressions of accessing any intervention services or more than 1 services on familial characteristics were performed, controlling for demographic and contextual variables. RESULTS:Twenty-five percent of children were receiving no intervention service; 26% were receiving 1 service; and 49% were receiving 2 or more services. Perceived developmental delay and not having a sibling in the home were associated with higher odds of receiving intervention services. Children were more likely to receive more than 1 service if their parents had at least a college education and low levels of stress. CONCLUSIONS: Factors including perceived developmental level, parental stress, and caring for siblings may play a role in accessing services for children with ASD. Results reveal that competing family needs may be barriers to service use. Mothers of children with ASD with multiple children in the home, low levels of education, and high levels of stress may need additional supports or alternative service delivery models.
RCT Entities:
OBJECTIVES: Parents of children with autism spectrum disorder (ASD) face competing demands when caring for their child and fulfilling family commitments. It remains unknown whether family obligations and parental stress might decrease the use of intervention services for young children with ASD. METHODS: The current study is a secondary analysis of baseline date from a published randomized control trial with 147 low-resourced caregiver-child dyads. Demographic information, data on service use, maternal employment, parent's perception of their child's development, and parental stress were collected for primary caregivers of 2- to 5-year-old children with ASD from 5 sites. Multiple logistic regressions of accessing any intervention services or more than 1 services on familial characteristics were performed, controlling for demographic and contextual variables. RESULTS: Twenty-five percent of children were receiving no intervention service; 26% were receiving 1 service; and 49% were receiving 2 or more services. Perceived developmental delay and not having a sibling in the home were associated with higher odds of receiving intervention services. Children were more likely to receive more than 1 service if their parents had at least a college education and low levels of stress. CONCLUSIONS: Factors including perceived developmental level, parental stress, and caring for siblings may play a role in accessing services for children with ASD. Results reveal that competing family needs may be barriers to service use. Mothers of children with ASD with multiple children in the home, low levels of education, and high levels of stress may need additional supports or alternative service delivery models.
Authors: Karen A Kuhlthau; Christina M Luberto; Lara Traeger; Rachel A Millstein; Giselle K Perez; Olivia J Lindly; Emma Chad-Friedman; Jacqueline Proszynski; Elyse R Park Journal: J Autism Dev Disord Date: 2020-07
Authors: Amy S Weitlauf; Neill Broderick; J Alacia Stainbrook; Julie Lounds Taylor; Catherine G Herrington; Amy G Nicholson; Madeline Santulli; Elisabeth M Dykens; A Pablo Juárez; Zachary E Warren Journal: Pediatrics Date: 2020-04 Impact factor: 7.124