Shailesh M Gondivkar1, Rahul R Bhowate2, Amol R Gadbail3, Sachin C Sarode4, Rima S Gondivkar5, Monal Yuwanati6, Shankargouda Patil7. 1. Department of Oral Medicine and Radiology, Government Dental College & Hospital, Nagpur, Maharashtra, India, Phone: +919604121273 e-mail: shailesh_gondivkar@yahoo.com. 2. Department of Oral Medicine and Radiology, Sharad Pawar Dental College & Hospital, Wardha, Maharashtra, India. 3. Department of Dentistry, Indira Gandhi Government Medical College & Hospital, Nagpur, Maharashtra, India. 4. Department of Oral Pathology and Microbiology, Dr. D. Y. Patil Dental College & Hospital, Dr. D. Y. Patil Vidyapeeth, Pune Maharashtra, India. 5. Private Practitioner, Mahalakshmi Nagar, Nagpur, Maharashtra India. 6. Department of Oral Pathology and Microbiology, People's College of Dental Sciences and Research Centre, Bhopal, Madhya Pradesh, India. 7. Division of Oral Pathology, Department of Maxillofacial Surgery and Diagnostic Sciences, College of Dentistry, Jazan University Jazan, Kingdom of Saudi Arabia.
Abstract
AIM: The aim of this study was to explore the patients' perspectives about the impact of oral submucous fibrosis (OSF) on life quality. MATERIALS AND METHODS: Thirty clinically diagnosed OSF patients with a wide degree of disease severity and diverse range of sociodemographic profile were included in this study. Fourteen participants were interviewed and four focus group discussions were conducted in nonclinical settings. The audio recordings were anonymized, transcribed, and translated in English from Marathi language. Data were analyzed using an in-depth narrative thematic analysis method. RESULTS: Four main themes evolved from the interviews: (1) discomfort and functional impairment; (2) psychological wellness; (3) physical wellness, and (4) social wellness. Majority of the participants discussed about discomfort and functional impairment. Participants also reported greater impact of OSF on psychological and social wellness. CONCLUSION: This study demonstrated the impact of OSF on different aspects of participant's life. "Discomfort and functional impairment" was noticed to be the most recognized theme by our participants. However, OSF also has impacts on other important domains, namely psychological, social, and physical wellness. CLINICAL SIGNIFICANCE: The patient-reported outcome (PRO) measure (PROM) reflects an integral aspect of general health and well-being and thus can be used to elucidate the impact of OSF on the quality of life (QoL) of affected individuals. These patients' perspectives should be taken into consideration along with thorough clinical examination to decide and effectively manage the overall health care needs of the OSF patients.
AIM: The aim of this study was to explore the patients' perspectives about the impact of oral submucous fibrosis (OSF) on life quality. MATERIALS AND METHODS: Thirty clinically diagnosed OSF patients with a wide degree of disease severity and diverse range of sociodemographic profile were included in this study. Fourteen participants were interviewed and four focus group discussions were conducted in nonclinical settings. The audio recordings were anonymized, transcribed, and translated in English from Marathi language. Data were analyzed using an in-depth narrative thematic analysis method. RESULTS: Four main themes evolved from the interviews: (1) discomfort and functional impairment; (2) psychological wellness; (3) physical wellness, and (4) social wellness. Majority of the participants discussed about discomfort and functional impairment. Participants also reported greater impact of OSF on psychological and social wellness. CONCLUSION: This study demonstrated the impact of OSF on different aspects of participant's life. "Discomfort and functional impairment" was noticed to be the most recognized theme by our participants. However, OSF also has impacts on other important domains, namely psychological, social, and physical wellness. CLINICAL SIGNIFICANCE: The patient-reported outcome (PRO) measure (PROM) reflects an integral aspect of general health and well-being and thus can be used to elucidate the impact of OSF on the quality of life (QoL) of affected individuals. These patients' perspectives should be taken into consideration along with thorough clinical examination to decide and effectively manage the overall health care needs of the OSF patients.
Entities:
Keywords:
Oral health; Oral submucous fibrosis; Patient-reported outcome measures Quality of life.
Authors: Shailesh M Gondivkar; Rahul R Bhowate; Amol R Gadbail; Rima S Gondivkar; Sachin C Sarode; Gargi S Saode Journal: Qual Life Res Date: 2019-04-01 Impact factor: 4.147
Authors: Dr Shailesh M Gondivkar; Dr Amol R Gadbail; Dr Sachin C Sarode; Dr Rima S Gondivkar; Shankargouda Patil; Dr Rahul N Gaikwad; Dr Monal Yuwanati Journal: J Oral Biol Craniofac Res Date: 2020-05-18
Authors: Shailesh M Gondivkar; Amol R Gadbail; Sachin C Sarode; Rima S Gondivkar; Shankargouda Patil; Rahul N Gaikwad; Monal Yuwanati Journal: J Oral Biol Craniofac Res Date: 2020-07-03