Literature DB >> 29575388

The ecology of patient and caregiver participation in consultations involving advanced cancer.

Jennifer Freytag1, Richard L Street1, Guibo Xing2, Paul R Duberstein3, Kevin Fiscella3, Daniel J Tancredi2, Joshua J Fenton2, Richard L Kravitz2, Ronald M Epstein3.   

Abstract

OBJECTIVE: To identify predictors of participation of patients with advanced cancer in clinical encounters with oncologists and to assess the impact of patient and caregiver participation on perceptions of physician support.
METHODS: This is a secondary data analysis from the Values and Options in Cancer Care study, a cluster randomized clinical trial of a patient-centered communication intervention. Patients and caregivers completed pre-visit and post-visit health and communication measures. Audio recorded patient-caregiver (when present)-physician encounters were coded for active patient/caregiver participation behaviors (eg, question asking, expressing concern) and for physicians' facilitative communication (eg, partnership-building, support). Mixed linear regression models were used to identify patient, physician, and situational factors predicting patient and patient plus caregiver communication behaviors and post-visit outcomes.
RESULTS: Physician partnership building predicted greater expressions of concern and more assertive responses from patients and patient-caregiver pairs. Patients' perceptions of greater connectedness with their physician predicted fewer patient expressions of concern. Patient perceptions of physician respect for their autonomy were lower among patients accompanied by caregivers. Caregiver perceptions of physician respect for patient autonomy decreased with increasing patient age and varied by site.
CONCLUSIONS: In advanced cancer care, patient and caregiver communication is affected by ecological factors within their consultations. Physicians can support greater patient participation in clinical encounters through facilitative communication such as partnership-building and supportive talk. The presence of a caregiver complicates this environment, but partnership building techniques may help promote patient and caregiver participation during these visits.
Copyright © 2018 John Wiley & Sons, Ltd.

Entities:  

Keywords:  cancer; caregiver; communication; oncology; patient participation; professional-patient relations

Mesh:

Year:  2018        PMID: 29575388      PMCID: PMC6103535          DOI: 10.1002/pon.4710

Source DB:  PubMed          Journal:  Psychooncology        ISSN: 1057-9249            Impact factor:   3.894


  37 in total

1.  Analyzing patient participation in medical encounters.

Authors:  R L Street; B Millay
Journal:  Health Commun       Date:  2001

Review 2.  Gender differences in health care provider-patient communication: are they due to style, stereotypes, or accommodation?

Authors:  Richard L Street
Journal:  Patient Educ Couns       Date:  2002-12

3.  Autonomy-related behaviors of patient companions and their effect on decision-making activity in geriatric primary care visits.

Authors:  Marla L Clayman; Debra Roter; Lawrence S Wissow; Karen Bandeen-Roche
Journal:  Soc Sci Med       Date:  2005-04       Impact factor: 4.634

Review 4.  Information giving and decision-making in patients with advanced cancer: a systematic review.

Authors:  Christine M Gaston; Geoffrey Mitchell
Journal:  Soc Sci Med       Date:  2005-11       Impact factor: 4.634

5.  Patient participation in medical consultations: why some patients are more involved than others.

Authors:  Richard L Street; Howard S Gordon; Michael M Ward; Edward Krupat; Richard L Kravitz
Journal:  Med Care       Date:  2005-10       Impact factor: 2.983

6.  Randomized controlled trial of a prompt list to help advanced cancer patients and their caregivers to ask questions about prognosis and end-of-life care.

Authors:  Josephine M Clayton; Phyllis N Butow; Martin H N Tattersall; Rhonda J Devine; Judy M Simpson; Ghauri Aggarwal; Katherine J Clark; David C Currow; Louise M Elliott; Judith Lacey; Philip G Lee; Michael A Noel
Journal:  J Clin Oncol       Date:  2007-02-20       Impact factor: 44.544

7.  Beliefs about control in the physician-patient relationship: effect on communication in medical encounters.

Authors:  Richard L Street; Edward Krupat; Robert A Bell; Richard L Kravitz; Paul Haidet
Journal:  J Gen Intern Med       Date:  2003-08       Impact factor: 5.128

8.  Health professionals' perspectives on information provision for patients with brain tumours and their families.

Authors:  D Langbecker; M Janda; P Yates
Journal:  Eur J Cancer Care (Engl)       Date:  2012-09-19       Impact factor: 2.520

9.  Physicians' communication and perceptions of patients: is it how they look, how they talk, or is it just the doctor?

Authors:  Richard L Street; Howard Gordon; Paul Haidet
Journal:  Soc Sci Med       Date:  2007-04-25       Impact factor: 4.634

Review 10.  A systematic review of prognostic/end-of-life communication with adults in the advanced stages of a life-limiting illness: patient/caregiver preferences for the content, style, and timing of information.

Authors:  Sharon M Parker; Josephine M Clayton; Karen Hancock; Sharon Walder; Phyllis N Butow; Sue Carrick; David Currow; Davina Ghersi; Paul Glare; Rebecca Hagerty; Martin H N Tattersall
Journal:  J Pain Symptom Manage       Date:  2007-05-25       Impact factor: 3.612

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  5 in total

Review 1.  Interventions for interpersonal communication about end of life care between health practitioners and affected people.

Authors:  Rebecca E Ryan; Michael Connolly; Natalie K Bradford; Simon Henderson; Anthony Herbert; Lina Schonfeld; Jeanine Young; Josephine I Bothroyd; Amanda Henderson
Journal:  Cochrane Database Syst Rev       Date:  2022-07-08

2.  Stronger therapeutic alliance is associated with better quality of life among patients with advanced cancer.

Authors:  Teresa Thomas; Andrew Althouse; Lauren Sigler; Robert Arnold; Edward Chu; Douglas B White; Margaret Rosenzweig; Kenneth Smith; Thomas J Smith; Yael Schenker
Journal:  Psychooncology       Date:  2021-03-08       Impact factor: 3.955

3.  Caregiver-oncologist prognostic concordance, caregiving esteem, and caregiver outcomes.

Authors:  Kah Poh Loh; Erin Watson; Eva Culakova; Marie Flannery; Michael Sohn; Huiwen Xu; Sindhuja Kadambi; Allison Magnuson; Colin McHugh; Chandrika Sanapala; Lee Kehoe; Victor G Vogel; Brian L Burnette; Vincent Vinciguerra; Supriya G Mohile; Paul R Duberstein
Journal:  J Geriatr Oncol       Date:  2022-03-08       Impact factor: 3.929

4.  Outpatient communication patterns in a cancer hospital in China: A qualitative study of doctor-patient encounters.

Authors:  Jiong Tu; Ge Kang; Jiudi Zhong; Yu Cheng
Journal:  Health Expect       Date:  2019-04-08       Impact factor: 3.377

5.  Association Between Caregiver-Oncologist Discordance in Patient's Life Expectancy Estimates and Caregiver Perceived Autonomy Support by the Oncologist.

Authors:  Gina Tuch; Chandrika Sanapala; Supriya G Mohile; Paul R Duberstein; Enrique Soto-Perez-de-Celis; Huiwen Xu; Eva Culakova; Marie Flannery; Reza Yousefi-Nooraie; Ronald M Epstein; Colin McHugh; Valerie Aarne; Hannah Kim; Jodi Geer; Mark A O'Rourke; Nicholas J Vogelzang; Kah Poh Loh
Journal:  Oncologist       Date:  2021-08-11
  5 in total

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