Literature DB >> 29557942

Development and Validation of a Patient-Reported Outcome Measurement for Symptom Assessment in Cirrhotic Ascites.

Myrte Neijenhuis1, Tom J G Gevers1, Thomas D Atwell2, Tim J Gunneson3, Amanda C Schimek3, Wietske Kievit4, Joost P H Drenth1, Patrick S Kamath3.   

Abstract

OBJECTIVES: As current treatments of cirrhotic ascites are not associated with survival benefit, symptom relief is the major therapeutic end point. We developed a questionnaire (Ascites-Q; modified polycystic liver disease questionnaire) and assessed validity and responsiveness for symptom assessment in cirrhotic ascites.
METHODS: Ascites-Q was compared with Functional Assessment of Chronic Illness Therapy-Ascites Index (FACIT-AI; developed for malignant ascites) and Japanese Ascites Symptom Inventory-7 (ASI-7) in cirrhotics undergoing large-volume paracentesis. Convergent validity was defined as correlation >0.4 between ascites questionnaires and quality of life (QoL) visual analog scale. Responsiveness was assessed by comparing scores at baseline and 7 days after large-volume paracentesis. To test discriminative ability, we compared scores of patients with cirrhotic controls without ascites (n=24) and diuretic-sensitive ascites (n=46).
RESULTS: We included 90 patients with refractory cirrhotic ascites (61% male, mean age 59 years, Model of End-Stage Liver Disease (MELD) score 16, median paracentesis volume 4,100 ml). Higher symptoms scores were correlated with lower QoL (Ascites-Q: r=0.479, P<0.001, FACIT-AI: r=0.313, P=0.007; ASI-7: r=0.340, P=0.004), but only Ascites-Q showed convergent validity (r>0.4). Symptoms decreased after paracentesis (Ascites-Q: 57 to 34, FACIT-AI: 44 to 33, and ASI-7: 57 to 25, all P<0.001). Ascites-Q and ASI-7 discriminated between controls without ascites, diuretic-sensitive, and refractory ascites (Ascites-Q: 16 vs. 35 vs. 56 points, ASI-7: 2 vs. 25 vs. 61 points, all P<0.05), whereas FACIT-AI (39 vs. 40 vs. 52 points) could not (P=0.314). Ascites-Q was validated at 3 months in an independent cohort with ascites controlled with a pump.
CONCLUSIONS: The Ascites-Q is the best ascites-specific outcome to evaluate symptom relief in cirrhotic ascites.

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Year:  2018        PMID: 29557942     DOI: 10.1038/ajg.2018.18

Source DB:  PubMed          Journal:  Am J Gastroenterol        ISSN: 0002-9270            Impact factor:   10.864


  37 in total

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6.  Midodrine and clonidine in patients with cirrhosis and refractory or recurrent ascites: a randomized pilot study.

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9.  Quality of life in refractory ascites: transjugular intrahepatic portal-systemic shunting versus medical therapy.

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Journal:  Hepatology       Date:  2005-09       Impact factor: 17.425

10.  Development and Validation of a Disease-Specific Questionnaire to Assess Patient-Reported Symptoms in Polycystic Liver Disease.

Authors:  Myrte K Neijenhuis; Tom J G Gevers; Marie C Hogan; Patrick S Kamath; Titus F M Wijnands; Ralf C P M van den Ouweland; Marie E Edwards; Jeff A Sloan; Wietske Kievit; Joost P H Drenth
Journal:  Hepatology       Date:  2016-04-15       Impact factor: 17.425

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  2 in total

1.  Ascites symptom inventory-7 is a valuable tool for evaluating the effectiveness of tolvaptan in patients with cirrhotic ascites.

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Journal:  Exp Ther Med       Date:  2020-11-10       Impact factor: 2.447

Review 2.  Management of portal hypertension and ascites in polycystic liver disease.

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Journal:  Liver Int       Date:  2019-09-20       Impact factor: 5.828

  2 in total

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