Selene Valero-Moreno1, Marián Pérez-Marín2, Inmaculada Montoya-Castilla3, Silvia Castillo-Corullón4, Alvar Ramírez-Aguilar4, Amparo Escribano-Montaner4,5. 1. Facultad de Psicología. Universitat de Valencia. 2. Departamento de Personalidad, Evaluación y Tratamientos Psicológicos, Facultad de Psicología. Universitat de Valencia. marian.perez@uv.es. 3. Departamento de Personalidad, Evaluación y Tratamientos Psicológicos, Facultad de Psicología. Universitat de Valencia. 4. Unidad de Neumología Infantil y Fibrosis Quística. Hospital Clínico y Universitario de Valencia. 5. Departamento de Pediatría, Obstetricia y Ginecología, Facultad de Medicina, Universitat de Valencia Valencia, España.
Abstract
INTRODUCTION: Adolescents with asthma face problems inherent to this stage in their development, to which the challenges of taking over control of their disease, complying with a daily treatment and regular medical followup are added. Any rejection generated by this may lead to treatment non-adherence and poor asthma control, which brings about problems in family dynamics, made worse by the stress or the emotional distress that this situation causes in caregivers. OBJECTIVE: Identify adjustment profiles and predictors of risk for the well-being of caregivers of pediatric patients with bronchial asthma. MATERIAL AND METHODS: Seventy-nine family caregivers of pediatric patients with bronchial asthma. Instruments were used to assess the emotional status (Hospital Anxiety and DepressionScale, HADS) and the perceived level of stress associated with medical care of a pediatric patient (Pediatric Inventory for Parents, PIP). We analyzed the patient's medical outcome measures and the family caregiver's psychological outcome measures regarding their emotional distress and stress. RESULTS: Of all caregivers studied, 34.8% exhibit anxiety symptomatology and moderate perceived stress. Emotional symptomatology correlates positively and significantly with the stress level. The models that best predict emotional distress of caregivers (40-50% of explained variance) include time since diagnosis and patient's treatment burden as stress indicators. CONCLUSIONS: The presence of stress resulting from care, time of exposure and burden of treatments associated with the disease are identified as the main predictors of risk for the well-being of caregivers. Sociedad Argentina de Pediatría.
INTRODUCTION: Adolescents with asthma face problems inherent to this stage in their development, to which the challenges of taking over control of their disease, complying with a daily treatment and regular medical followup are added. Any rejection generated by this may lead to treatment non-adherence and poor asthma control, which brings about problems in family dynamics, made worse by the stress or the emotional distress that this situation causes in caregivers. OBJECTIVE: Identify adjustment profiles and predictors of risk for the well-being of caregivers of pediatric patients with bronchial asthma. MATERIAL AND METHODS: Seventy-nine family caregivers of pediatric patients with bronchial asthma. Instruments were used to assess the emotional status (Hospital Anxiety and DepressionScale, HADS) and the perceived level of stress associated with medical care of a pediatric patient (Pediatric Inventory for Parents, PIP). We analyzed the patient's medical outcome measures and the family caregiver's psychological outcome measures regarding their emotional distress and stress. RESULTS: Of all caregivers studied, 34.8% exhibit anxiety symptomatology and moderate perceived stress. Emotional symptomatology correlates positively and significantly with the stress level. The models that best predict emotional distress of caregivers (40-50% of explained variance) include time since diagnosis and patient's treatment burden as stress indicators. CONCLUSIONS: The presence of stress resulting from care, time of exposure and burden of treatments associated with the disease are identified as the main predictors of risk for the well-being of caregivers. Sociedad Argentina de Pediatría.
Entities:
Keywords:
Adolescent; Bronchial asthma; Emotional well-being; Family caregiver
Authors: Pilar Rodríguez-Rubio; Laura Lacomba-Trejo; Selene Valero-Moreno; Inmaculada Montoya-Castilla; Marián Pérez-Marín Journal: Int J Environ Res Public Health Date: 2022-03-08 Impact factor: 3.390