Mirjam N Landgraf1, Lucia Albers2, Birte Rahmsdorf3, Katharina Vill3, Lucia Gerstl3, Michaela Lippert3, Florian Heinen3. 1. Department of Paediatric Neurology and Developmental Medicine, Dr. von Hauner Children's Hospital, Ludwig-Maximilians-University LMU, Lindwurmstrasse 4, 80337, Munich, Germany. Electronic address: mirjam.landgraf@med.uni-muenchen.de. 2. Institute of Social Paediatrics and Adolescent Medicine, Ludwig-Maximilians-University LMU, Haydnstrasse 5, 80335, Munich, Germany. 3. Department of Paediatric Neurology and Developmental Medicine, Dr. von Hauner Children's Hospital, Ludwig-Maximilians-University LMU, Lindwurmstrasse 4, 80337, Munich, Germany.
Abstract
OBJECTIVE: The objective of our study was to evaluate the knowledge about fetal alcohol spectrum disorders (FASD) and the implementation of the German guideline for FASD among different professionals in the health and social system and among parents with children with FASD. METHODS: A questionnaire about FASD, containing 20 items, was sent by post to all children's hospitals (n = 287), all hospitals for child and adolescent psychiatry (n = 173), all social paediatric centres (n = 162), all neuropaediatricians (n = 129) and all youth welfare offices (n = 672) in Germany. Furthermore a link to the questionnaire as online version was put in the member's newsletter by 14 relevant professional societies. Besides, the questionnaire was distributed personally to the attendees of the annual national FASD conference (n = 363). RESULTS: Altogether 428 persons took part in the survey. 273 participants were professionals and 155 parents of children with FASD. More than 95% of the professionals and parents knew that alcohol consumption during pregnancy constitutes a risk for the child. The prevalence of maternal alcohol consumption and of FASD was underestimated. Although approx. 70% of the professionals knew which disorders belong to FASD just a few could tell their specific deficits. Questions regarding effective intervention for children with FASD and the long-term outcome were only partially answered correctly. DISCUSSION: Professionals in the German health and social system are aware of FASD but underestimate the level of damage and the impact on every day functioning of the affected people.
OBJECTIVE: The objective of our study was to evaluate the knowledge about fetal alcohol spectrum disorders (FASD) and the implementation of the German guideline for FASD among different professionals in the health and social system and among parents with children with FASD. METHODS: A questionnaire about FASD, containing 20 items, was sent by post to all children's hospitals (n = 287), all hospitals for child and adolescent psychiatry (n = 173), all social paediatric centres (n = 162), all neuropaediatricians (n = 129) and all youth welfare offices (n = 672) in Germany. Furthermore a link to the questionnaire as online version was put in the member's newsletter by 14 relevant professional societies. Besides, the questionnaire was distributed personally to the attendees of the annual national FASD conference (n = 363). RESULTS: Altogether 428 persons took part in the survey. 273 participants were professionals and 155 parents of children with FASD. More than 95% of the professionals and parents knew that alcohol consumption during pregnancy constitutes a risk for the child. The prevalence of maternal alcohol consumption and of FASD was underestimated. Although approx. 70% of the professionals knew which disorders belong to FASD just a few could tell their specific deficits. Questions regarding effective intervention for children with FASD and the long-term outcome were only partially answered correctly. DISCUSSION: Professionals in the German health and social system are aware of FASD but underestimate the level of damage and the impact on every day functioning of the affected people.
Authors: Moritz Blanck-Lubarsch; Dieter Dirksen; Reinhold Feldmann; Cristina Sauerland; Ariane Hohoff Journal: Int J Environ Res Public Health Date: 2019-07-16 Impact factor: 3.390
Authors: Janina Maschke; Jakob Roetner; Tamme W Goecke; Peter A Fasching; Matthias W Beckmann; Oliver Kratz; Gunther H Moll; Bernd Lenz; Johannes Kornhuber; Anna Eichler Journal: Brain Sci Date: 2021-01-25
Authors: Moritz Blanck-Lubarsch; Dieter Dirksen; Reinhold Feldmann; Cristina Sauerland; Ariane Hohoff Journal: Int J Environ Res Public Health Date: 2019-11-11 Impact factor: 3.390