Literature DB >> 29542400

Micro-Meso-Macro Practice Tensions in Using Patient-Reported Outcome and Experience Measures in Hospital Palliative Care.

Marian Krawczyk1, Richard Sawatzky1, Kara Schick-Makaroff2, Kelli Stajduhar3, Joakim Öhlen4, Sheryl Reimer-Kirkham1, Esther Mercedes Laforest5, Robin Cohen5.   

Abstract

This article applies a micro-meso-macro analytical framework to understand clinicians' experiences and perspectives of using patient-reported outcome and experience measures (PROMs and PREMs) in routine hospital-based palliative care. We structure our discussion through qualitative analysis of a design and implementation project for using an electronic tablet-based tool among hospital-based palliative clinicians to assess patients' and their family caregivers' quality of life concerns and experiences of care. Our analysis identified three categories of practice tensions shaping clinicians' use of PROMs and PREMs in routine care: tensions surrounding implementation, tensions in standardization and quantification, and tensions that arose from scope of practice concerns. Our findings highlight that clinicians necessarily work within the confluence of multiple system priorities, that navigating these priorities can result in irreducible practice tensions, and that awareness of these tensions is a critical consideration when integrating PROMs and PREMs into routine practice.

Entities:  

Keywords:  Canada; macro-meso-micro; palliative care; patientreported outcome measures; qualitative; quality of life assessment

Year:  2018        PMID: 29542400     DOI: 10.1177/1049732318761366

Source DB:  PubMed          Journal:  Qual Health Res        ISSN: 1049-7323


  13 in total

1.  Interpretation and use of patient-reported outcome measures through a philosophical lens.

Authors:  Jae Yung Kwon; Sally Thorne; Richard Sawatzky
Journal:  Qual Life Res       Date:  2018-11-19       Impact factor: 4.147

2.  A narrative review of current evidence supporting the implementation of electronic patient-reported outcome measures in the management of chronic diseases.

Authors:  Olalekan Lee Aiyegbusi; Devika Nair; John Devin Peipert; Kara Schick-Makaroff; Istvan Mucsi
Journal:  Ther Adv Chronic Dis       Date:  2021-05-24       Impact factor: 5.091

3.  Design and introduction of a quality of life assessment and practice support system: perspectives from palliative care settings.

Authors:  Richard Sawatzky; Esther Laforest; Kara Schick-Makaroff; Kelli Stajduhar; Sheryl Reimer-Kirkham; Marian Krawczyk; Joakim Öhlén; Barbara McLeod; Neil Hilliard; Carolyn Tayler; S Robin Cohen
Journal:  J Patient Rep Outcomes       Date:  2018-08-22

4.  Enabling patients with advanced chronic obstructive pulmonary disease to identify and express their support needs to health care professionals: A qualitative study to develop a tool.

Authors:  A Carole Gardener; Gail Ewing; Morag Farquhar
Journal:  Palliat Med       Date:  2019-03-05       Impact factor: 4.762

5.  Macro- and meso-level contextual influences on health care inequities among American Indian elders.

Authors:  Cathleen E Willging; Elise Trott Jaramillo; Emily Haozous; David H Sommerfeld; Steven P Verney
Journal:  BMC Public Health       Date:  2021-04-01       Impact factor: 3.295

6.  Using Patient- and Family-Reported Outcome and Experience Measures Across Transitions of Care for Frail Older Adults Living at Home: A Meta-Narrative Synthesis.

Authors:  Kara Schick-Makaroff; Mehri Karimi-Dehkordi; Lena Cuthbertson; Duncan Dixon; S Robin Cohen; Neil Hilliard; Richard Sawatzky
Journal:  Gerontologist       Date:  2021-04-03

7.  A cluster randomized controlled trial for the Evaluation of routinely Measured PATient reported outcomes in HemodialYsis care (EMPATHY): a study protocol.

Authors:  Jeffrey A Johnson; Fatima Al Sayah; Robert Buzinski; Bonnie Corradetti; Sara N Davison; Meghan J Elliott; Scott Klarenbach; Braden Manns; Kara Schick-Makaroff; Hilary Short; Chandra Thomas; Michael Walsh
Journal:  BMC Health Serv Res       Date:  2020-08-10       Impact factor: 2.655

Review 8.  How do patient reported outcome measures (PROMs) support clinician-patient communication and patient care? A realist synthesis.

Authors:  Joanne Greenhalgh; Kate Gooding; Elizabeth Gibbons; Sonia Dalkin; Judy Wright; Jose Valderas; Nick Black
Journal:  J Patient Rep Outcomes       Date:  2018-09-15

Review 9.  Patient Work and Their Contexts: Scoping Review.

Authors:  Kathleen Yin; Joshua Jung; Enrico Coiera; Liliana Laranjo; Ann Blandford; Adeel Khoja; Wan-Tien Tai; Daniel Psillakis Phillips; Annie Y S Lau
Journal:  J Med Internet Res       Date:  2020-06-02       Impact factor: 5.428

10.  Implementing person-centred outcome measures in palliative care: An exploratory qualitative study using Normalisation Process Theory to understand processes and context.

Authors:  Andy Bradshaw; Martina Santarelli; Malene Mulderrig; Assem Khamis; Kathryn Sartain; Jason W Boland; Michael I Bennett; Miriam Johnson; Mark Pearson; Fliss E M Murtagh
Journal:  Palliat Med       Date:  2020-11-29       Impact factor: 4.762

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