Literature DB >> 29529932

Ethical Research Practice or Undue Influence? Symbolic Power in Community- and Individual-Level Informed Consent Processes in Community-Based Participatory Research in Swaziland.

Michelle Brear1,2.   

Abstract

In community-based participatory research (CBPR), community-level consent is assumed to enhance ethical rigor, when obtained prior to individual informed consent. However, community leaders' permission to conduct research may influence individuals' agency to decline participation. This article presents findings of a Bourdieusian analysis of ethnographic data documenting CBPR in rural Swaziland. The findings reveal that the "symbolic power" of leaders who provide community-level consent constrains individual agency and reproduces existing relations of power, if individual informed consent is simply a procedure. However, when informed consent is a process that introduces notions of autonomy and rights, it can disrupt power relations. Implications for ethical CBPR practice, and ethnography's value for developing theory from real-world research ethics practice, are discussed.

Keywords:  CBPR; community consent; ethnographic research; symbolic power; voluntary informed consent

Mesh:

Year:  2018        PMID: 29529932     DOI: 10.1177/1556264618761268

Source DB:  PubMed          Journal:  J Empir Res Hum Res Ethics        ISSN: 1556-2646            Impact factor:   1.742


  2 in total

1.  The picture talk project: Aboriginal community input on consent for research.

Authors:  Emily Fm Fitzpatrick; Gaynor Macdonald; Alexandra Lc Martiniuk; June Oscar; Heather D'Antoine; Maureen Carter; Tom Lawford; Elizabeth J Elliott
Journal:  BMC Med Ethics       Date:  2019-01-29       Impact factor: 2.652

2.  Experiences of parents whose children participated in a longitudinal follow-up study.

Authors:  Nike Franke; Jennifer Rogers; Trecia Wouldes; Kim Ward; Gavin Brown; Monique Jonas; Peter Keegan; Jane Harding
Journal:  Health Expect       Date:  2022-04-08       Impact factor: 3.318

  2 in total

北京卡尤迪生物科技股份有限公司 © 2022-2023.