Literature DB >> 29526389

Facilitating collaborative and effective family involvement in the cancer setting: Guidelines for clinicians (TRIO Guidelines-1).

Rebekah Laidsaar-Powell1, Phyllis Butow2, Frances Boyle3, Ilona Juraskova2.   

Abstract

OBJECTIVE: Family caregivers regularly attend medical consultations and are often involved in decision-making; however, there are few practical strategies to guide effective communication for the clinician-patient-family trio. We aimed to develop and evaluate the first comprehensive guidelines for oncology physicians and nurses, on how to positively and effectively involve family caregivers of adult patients in consultations and patient care (TRIO Guidelines-1) and how to manage challenging interactions with family caregivers (TRIO Guidelines-2).
METHODS: The TRIO Guidelines were based on a comprehensive literature review and input from an expert advisory group (n = 10). They underwent two rounds of formal evaluation via an online Delphi consensus process involving international experts (n = 35), and a subset were piloted with 24 breast cancer clinicians in a workshop format.
RESULTS: TRIO Guidelines-1 incorporate strategies and sub-strategies on facilitating collaborative and effective family involvement (6 topics). Example wording, behaviours, and level of evidence are provided throughout. All 24 clinicians rated the guidelines as helpful after the pilot workshop.
CONCLUSION: These guidelines will be a useful educational tool for clinicians and medical/nursing students. PRACTICE IMPLICATIONS: By equipping clinicians with strategies to facilitate effective and collaborative family engagement, the TRIO Guidelines have the potential to transform communication in clinical practice.
Copyright © 2018 Elsevier B.V. All rights reserved.

Entities:  

Keywords:  Communication strategies; Delphi consensus process; Family caregivers; Guidelines; Oncology health professionals

Mesh:

Year:  2018        PMID: 29526389     DOI: 10.1016/j.pec.2018.01.019

Source DB:  PubMed          Journal:  Patient Educ Couns        ISSN: 0738-3991


  8 in total

1.  Caring for the informal cancer caregiver.

Authors:  Virginia Sun; Dan J Raz; Jae Y Kim
Journal:  Curr Opin Support Palliat Care       Date:  2019-09       Impact factor: 2.302

2.  Provider perspectives on integrating family caregivers into patient care encounters.

Authors:  Joan M Griffin; Catherine Riffin; Lauren R Bangerter; Karen Schaepe; Rachel D Havyer
Journal:  Health Serv Res       Date:  2022-01-26       Impact factor: 3.734

3.  A new grounded theory model of sexual adjustment to HIV: facilitators of sexual adjustment and recommendations for clinical practice.

Authors:  Ben Huntingdon; Louise Sharpe; John de Wit; Martin Duracinsky; Ilona Juraskova
Journal:  BMC Infect Dis       Date:  2020-01-13       Impact factor: 3.090

4.  In the Shadows of Patients with Upper Gastrointestinal Cancer: An Interview Study with Next of Kin about Their Experiences Participating in Surgical Cancer Care.

Authors:  Farzana Ibrahim; Carina Wennerholm; Per Sandström; Anna Lindhoff Larsson; Bergthor Björnsson; Jenny Drott
Journal:  Clin Nurs Res       Date:  2020-07-10       Impact factor: 2.075

5.  Some Unresolved Ethical Challenges in Healthcare Decision-Making: Navigating Family Involvement.

Authors:  Sumytra Menon; Vikki A Entwistle; Alastair V Campbell; Johannes J M van Delden
Journal:  Asian Bioeth Rev       Date:  2020-03-05

6.  Involvement of adult children in treatment decision-making for older patients with cancer - a qualitative study of perceptions and experiences of oncology surgeons and nurses.

Authors:  Bea L Dijkman; Wolter Paans; Hanneke Van der Wal-Huisman; Barbara L van Leeuwen; Marie Louise Luttik
Journal:  Support Care Cancer       Date:  2022-09-01       Impact factor: 3.359

7.  Single cases from multiple perspectives: a qualitative study comparing the experiences of patients, patients' caregivers, surgeons, and nurses when bad news is delivered about cancer.

Authors:  Tamyra Matthews; Donald Baken; Kirsty Ross
Journal:  J Psychosoc Oncol Res Pract       Date:  2020-09-18

8.  Preparing for partnerships in cancer care: an explorative analysis of the role of family-based caregivers.

Authors:  Reema Harrison; Madhav Raman; Ramesh Lahiru Walpola; Ashfaq Chauhan; Ursula M Sansom-Daly
Journal:  BMC Health Serv Res       Date:  2021-06-29       Impact factor: 2.655

  8 in total

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