Literature DB >> 29510843

Lessons Learned Recruiting Minority Participants for Research in Urban Community Health Centers.

Elizabeth Fam1, Jeanne M Ferrante2.   

Abstract

To help understand and mitigate health disparities, it is important to conduct research with underserved and underrepresented minority populations under real world settings. There is a gap in the literature detailing real-time research staff experience, particularly in their own words, while conducting in-person patient recruitment in urban community health centers. This paper describes challenges faced at the clinic, staff, and patient levels, our lessons learned, and strategies implemented by research staff while recruiting predominantly low-income African-American women for an interviewer-administered survey study in four urban Federally Qualified Health Centers in New Jersey. Using a series of immersion-crystallization cycles, fieldnotes and research reflections written by recruiters, along with notes from team meetings during the study, were qualitatively analyzed. Clinic level barriers included: physical layout of clinic, very low or high patient census, limited private space, and long wait times for patients. Staff level barriers included: unengaged staff, overburdened staff, and provider and staff turnover. Patient level barriers included: disinterested patients, patient mistrust and concerns over confidentiality, no-shows or lack of patient time, and language barrier. We describe strategies used to overcome these barriers and provide recommendations for in-person recruitment of underserved populations into research studies. To help mitigate health disparities, disseminating recruiters' experiences, challenges, and effective strategies used will allow other researchers to build upon these experience in order to increase recruitment success of underserved and underrepresented minority populations into research studies.
Copyright © 2018 National Medical Association. Published by Elsevier Inc. All rights reserved.

Entities:  

Keywords:  Health disparities; Minorities; Recruitment; Underserved populations

Mesh:

Year:  2017        PMID: 29510843      PMCID: PMC5844362          DOI: 10.1016/j.jnma.2017.06.011

Source DB:  PubMed          Journal:  J Natl Med Assoc        ISSN: 0027-9684            Impact factor:   1.798


  22 in total

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Journal:  J Am Diet Assoc       Date:  2004-01

2.  Translational research at community health centers: challenges and successes in recruiting and retaining low-income Latino patients with type 2 diabetes into a randomized clinical trial.

Authors:  Milagros C Rosal; Mary Jo White; Amy Borg; Jeffrey Scavron; Lucy Candib; Ira Ockene; Robert Magner
Journal:  Diabetes Educ       Date:  2010-08-20       Impact factor: 2.140

3.  Prevalence of Obesity Among Adults and Youth: United States, 2011-2014.

Authors:  Cynthia L Ogden; Margaret D Carroll; Cheryl D Fryar; Katherine M Flegal
Journal:  NCHS Data Brief       Date:  2015-11

4.  Cancer statistics for African Americans, 2016: Progress and opportunities in reducing racial disparities.

Authors:  Carol E DeSantis; Rebecca L Siegel; Ann Goding Sauer; Kimberly D Miller; Stacey A Fedewa; Kassandra I Alcaraz; Ahmedin Jemal
Journal:  CA Cancer J Clin       Date:  2016-02-22       Impact factor: 508.702

5.  Decreased Cancer Mortality-to-Incidence Ratios with Increased Accessibility of Federally Qualified Health Centers.

Authors:  Swann Arp Adams; Seul Ki Choi; Leepao Khang; Dayna A Campbell; Daniela B Friedman; Jan M Eberth; Russell E Glasgow; Reginald Tucker-Seeley; Sudha Xirasagar; Mei Po Yip; Vicki M Young; James R Hébert
Journal:  J Community Health       Date:  2015-08

6.  Intrauterine devices at six months: does patient age matter? Results from an urban family medicine federally qualified health center (FQHC) network.

Authors:  Anita Ravi; Linda Prine; Eve Waltermaurer; Natasha Miller; Susan E Rubin
Journal:  J Am Board Fam Med       Date:  2014 Nov-Dec       Impact factor: 2.657

7.  Psychometric evaluation of the impact of weight on quality of life-lite questionnaire (IWQOL-lite) in a community sample.

Authors:  Ronette L Kolotkin; Ross D Crosby
Journal:  Qual Life Res       Date:  2002-03       Impact factor: 4.147

8.  A collaborative approach to the recruitment and retention of minority patients with diabetes in rural community health centers.

Authors:  Richard M Davis; Angela D Hitch; Michele Nichols; Ali Rizvi; Muhammad Salaam; Elizabeth J Mayer-Davis
Journal:  Contemp Clin Trials       Date:  2008-09-16       Impact factor: 2.226

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Authors:  Sheridan Miyamoto; Stuart Henderson; Heather Young; Deborah Ward; Vanessa Santillan
Journal:  J Rural Health       Date:  2012-10-25       Impact factor: 4.333

10.  Recruitment of minority and underserved populations in the United States: the Centers for Population Health and Health Disparities experience.

Authors:  Electra D Paskett; Katherine W Reeves; John M McLaughlin; Mira L Katz; Ann Scheck McAlearney; Mack T Ruffin; Chanita Hughes Halbert; Cristina Merete; Faith Davis; Sarah Gehlert
Journal:  Contemp Clin Trials       Date:  2008-07-31       Impact factor: 2.226

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  5 in total

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Authors:  Christian M Simon; Kai Wang; Laura A Shinkunas; Daniel T Stein; Paul Meissner; Maureen Smith; Rebecca Pentz; David W Klein
Journal:  J Empir Res Hum Res Ethics       Date:  2021-08-19       Impact factor: 1.742

2.  Access to Cancer Care Resources in a Federally Qualified Health Center: a Mixed Methods Study to Increase the Understanding of Met and Unmet Needs of Cancer Survivors.

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Journal:  J Cancer Educ       Date:  2021-06       Impact factor: 2.037

3.  Engaging limited English proficient and ethnically diverse low-income women in health research: A randomized trial of a patient navigator intervention.

Authors:  Alyssa Nickell; Susan L Stewart; Nancy J Burke; Claudia Guerra; Elly Cohen; Catherine Lawlor; Susan Colen; Janice Cheng; Galen Joseph
Journal:  Patient Educ Couns       Date:  2019-02-11

4.  African American Cancer Survivors' Perspectives on Cancer Clinical Trial Participation in a Safety-Net Hospital: Considering the Role of the Social Determinants of Health.

Authors:  N D Hernandez; R Durant; N Lisovicz; C Nweke; C Belizaire; D Cooper; F Soiro; D Rivers; S Sodeke; B M Rivers
Journal:  J Cancer Educ       Date:  2021-03-16       Impact factor: 1.771

5.  Applying the integrated marketing communication approach to recruit and retain African American women.

Authors:  Traci Hayes; Manoj Sharma
Journal:  Health Promot Perspect       Date:  2021-12-19
  5 in total

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