Hiroko Kamitani1, Hiroyuki Umegaki1, Kazushi Okamoto2, Shigeru Kanda3, Atsushi Asai4, Takuya Shimojima5, Hideki Nomura6, Ayako Hattori7, Takaya Kimata8, Yusuke Suzuki9, Hiroko Ohshima10, Masafumi Kuzuya1. 1. Department of Community Healthcare and Geriatrics, Nagoya University Graduate School of Medicine. 2. Department of Public Health, Aichi Prefectural College of Nursing and Health. 3. Minami Health-Medical Cooperative Kaname Hospital. 4. Sanei Clinic. 5. Houmonshinryoujyo Shimojima. 6. Aichi Shinryoujyo Nonami. 7. Kamiishikougen Hospital. 8. Aoi Zaitaku Shinryoujyo. 9. Centre for Community Liaison and Patient Consultation. 10. National Center for Geriatrics and Gerontology, Section for Nursing and Care.
Abstract
AIM: We developed quality-of-life (QOL) scales for patients receiving home medical care. The objective of this study was to examine the agreement between the scores of the scales answered by patients and those answered by their proxy, as cognitive decline may interfere with one's ability to understand complex topics, such as the QOL. METHODS: Participants were pairs of patients receiving home medical care and their proxy. The patients were asked to complete self-reported QOL scales (QOL-HC), and their proxies were asked to complete proxy-reported versions of the QOL scales (QOL-HC for caregivers). We then statistically examined the extent of agreement between the self- and proxy-reported QOL-HC scores using contingency tables and Spearman's rank correlation coefficient. The SPSS software program, version 24, was used for all statistical analyses. RESULTS: The concordance rate between patients and caregivers for questions 1 ( "Do you have peace of mind?" ), 2 ( "Do you feel satisfied with your life when you reflect on it?" ), 3 ( "Do you have someone that you spend time talking with?" ), and 4 ( "Are you satisfied with the home care service system?" ) were 52.3%, 52.3%, 79.5%, and 81.8%, respectively. The total scores for the patients and caregivers were significantly correlated (Spearman's ρ=0.364*). CONCLUSIONS: We created the first QOL scale for patients receiving home-based medical care and for caregivers. The findings of this study suggest that the QOL-HC can be used in clinical practice for the assessment of patients receiving professional home care.
AIM: We developed quality-of-life (QOL) scales for patients receiving home medical care. The objective of this study was to examine the agreement between the scores of the scales answered by patients and those answered by their proxy, as cognitive decline may interfere with one's ability to understand complex topics, such as the QOL. METHODS:Participants were pairs of patients receiving home medical care and their proxy. The patients were asked to complete self-reported QOL scales (QOL-HC), and their proxies were asked to complete proxy-reported versions of the QOL scales (QOL-HC for caregivers). We then statistically examined the extent of agreement between the self- and proxy-reported QOL-HC scores using contingency tables and Spearman's rank correlation coefficient. The SPSS software program, version 24, was used for all statistical analyses. RESULTS: The concordance rate between patients and caregivers for questions 1 ( "Do you have peace of mind?" ), 2 ( "Do you feel satisfied with your life when you reflect on it?" ), 3 ( "Do you have someone that you spend time talking with?" ), and 4 ( "Are you satisfied with the home care service system?" ) were 52.3%, 52.3%, 79.5%, and 81.8%, respectively. The total scores for the patients and caregivers were significantly correlated (Spearman's ρ=0.364*). CONCLUSIONS: We created the first QOL scale for patients receiving home-based medical care and for caregivers. The findings of this study suggest that the QOL-HC can be used in clinical practice for the assessment of patients receiving professional home care.
Entities:
Keywords:
Agreement; Dementia; Home care services; Proxy; Quality of life (QOL)
Authors: David J Weiss; Chun Wang; King Yiu Suen; Jeffrey Basford; Andrea Cheville Journal: Arch Phys Med Rehabil Date: 2021-10-20 Impact factor: 4.060