Literature DB >> 29498746

Self-Management Support and eHealth When Managing Changes in Behavior and Mood of a Relative With Dementia: An Asynchronous Online Focus Group Study of Family Caregivers' Needs.

Judith G Huis In Het Veld, Renate Verkaik, Berno van Meijel, Paul-Jeroen Verkade, Wendy Werkman, Cees M P M Hertogh, Anneke L Francke.   

Abstract

The current article discusses how and by whom family caregivers want to be supported in self-management when managing changes in behavior and mood of relatives with dementia and whether family caregivers consider eHealth a useful tool for self-management support. Four asynchronous online focus groups were held with 32 family caregivers of individuals with dementia. Transcripts of the online focus groups were analyzed using qualitative thematic analysis. Family caregivers need support from professionals or peers in the form of (a) information about dementia and its symptoms, (b) tips and advice on managing changes in behavior and mood, (c) opportunities to discuss experiences and feelings, and (d) appreciation and acknowledgement of caregiving. The opinions of family caregivers about self-management support through eHealth were also reported. Findings suggest a personal approach is essential to self-management support for family caregivers managing changes in behavior and mood of relatives with dementia. In addition, self-management support can be provided to some extent through eHealth, but this medium cannot replace personal contacts entirely. [Res Gerontol Nurs. 2018; 11(3):151-159.]. Copyright 2018 Huis in het Veld, Verkaik, van Meijel, Verkade, Werkman, Hertogh, and Francke.

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Year:  2018        PMID: 29498746     DOI: 10.3928/19404921-20180216-01

Source DB:  PubMed          Journal:  Res Gerontol Nurs        ISSN: 1938-2464            Impact factor:   1.571


  8 in total

1.  Asynchronous Online Focus Groups for Health Research: Case Study and Lessons Learned.

Authors:  Allegra R Gordon; Jerel P Calzo; Rose Eiduson; Kendall Sharp; Scout Silverstein; Ethan Lopez; Katharine Thomson; Sari L Reisner
Journal:  Int J Qual Methods       Date:  2021-02-09

Review 2.  A systematic review of systematic reviews of needs of family caregivers of older adults with dementia.

Authors:  Oladele Atoyebi; Janice J Eng; François Routhier; Marie-Louise Bird; W Ben Mortenson
Journal:  Eur J Ageing       Date:  2022-01-13

Review 3.  Hybrid Concept Analysis of Self-Management Support: School Nurses Supporting Students with Psychogenic Nonepileptic Seizures.

Authors:  Andrea Tanner; Jane von Gaudecker; Janice M Buelow; Wendy R Miller
Journal:  J Sch Nurs       Date:  2021-11-23       Impact factor: 2.361

4.  A cross-sectional evaluation of the Dutch RHAPSODY program: online information and support for caregivers of persons with young-onset dementia.

Authors:  Maud Daemen; Jeroen Bruinsma; Christian Bakker; Rob Groot Zwaaftink; Raymond Koopmans; Andrea Oostijen; Bernard Loose; Frans Verhey; Marjolein de Vugt; Kirsten Peetoom
Journal:  Internet Interv       Date:  2022-03-26

5.  Process Evaluation of Nurse-Led Online Self-Management Support for Family Caregivers to Deal With Behavior Changes of a Relative With Dementia (Part 1): Mixed Methods Study.

Authors:  Judith G Huis In Het Veld; Iris F M van Asch; Bernadette M Willemse; Paul-Jeroen Verkade; Anne Margriet Pot; Marco M Blom; Rob B M Groot Zwaaftink; Anneke L Francke
Journal:  J Med Internet Res       Date:  2019-10-11       Impact factor: 5.428

Review 6.  Barriers to and Facilitators of User Engagement With Digital Mental Health Interventions: Systematic Review.

Authors:  Judith Borghouts; Elizabeth Eikey; Gloria Mark; Cinthia De Leon; Stephen M Schueller; Margaret Schneider; Nicole Stadnick; Kai Zheng; Dana Mukamel; Dara H Sorkin
Journal:  J Med Internet Res       Date:  2021-03-24       Impact factor: 5.428

Review 7.  Becoming a Family Caregiver to a Person With Dementia: A Literature Review on the Needs of Family Caregivers.

Authors:  Vibeke Østergaard Steenfeldt; Lars Christian Aagerup; Anna Holm Jacobsen; Ulla Skjødt
Journal:  SAGE Open Nurs       Date:  2021-07-22

Review 8.  Self-Management of Dementia by Family Carers: A Scoping Review.

Authors:  Anas Shehadeh; Sharyn Hunter; Sarah Jeong
Journal:  Gerontol Geriatr Med       Date:  2021-05-20
  8 in total

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