Literature DB >> 29481107

Ethical aspects of data sharing and research participant protections.

Michael W Ross1, Martin Y Iguchi2, Sangeeta Panicker3.   

Abstract

Open access is fast becoming the norm across science. Sharing research data broadly has the potential to accelerate scientific progress, optimize the value of data, and promote scientific integrity. However, data sharing also poses new practical and ethical challenges to the conduct of research with human participants. This article provides an overview of how open access to research data has impacted the core principles of research ethics-respect for persons, beneficence, and justice-and, in turn, how a reinterpretation of these principles translates to procedures for the protection of the rights and wellbeing of human research participants. (PsycINFO Database Record (c) 2018 APA, all rights reserved).

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Year:  2018        PMID: 29481107     DOI: 10.1037/amp0000240

Source DB:  PubMed          Journal:  Am Psychol        ISSN: 0003-066X


  5 in total

Review 1.  Open Humans: A platform for participant-centered research and personal data exploration.

Authors:  Bastian Greshake Tzovaras; Misha Angrist; Kevin Arvai; Mairi Dulaney; Vero Estrada-Galiñanes; Beau Gunderson; Tim Head; Dana Lewis; Oded Nov; Orit Shaer; Athina Tzovara; Jason Bobe; Mad Price Ball
Journal:  Gigascience       Date:  2019-06-01       Impact factor: 6.524

2.  Biomedical Data Sharing Among Researchers: A Study from Jordan.

Authors:  Lina Al-Ebbini; Omar F Khabour; Karem H Alzoubi; Almuthanna K Alkaraki
Journal:  J Multidiscip Healthc       Date:  2020-11-23

Review 3.  The spectrum of data sharing policies in neuroimaging data repositories.

Authors:  Anita S Jwa; Russell A Poldrack
Journal:  Hum Brain Mapp       Date:  2022-02-10       Impact factor: 5.399

Review 4.  Dynamics of cumulative advantage and threats to equity in open science: a scoping review.

Authors:  Tony Ross-Hellauer; Stefan Reichmann; Nicki Lisa Cole; Angela Fessl; Thomas Klebel; Nancy Pontika
Journal:  R Soc Open Sci       Date:  2022-01-19       Impact factor: 2.963

5.  Opening Pandora's Box: Peeking inside Psychology's data sharing practices, and seven recommendations for change.

Authors:  John N Towse; David A Ellis; Andrea S Towse
Journal:  Behav Res Methods       Date:  2020-11-11
  5 in total

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