Literature DB >> 29479250

Children with medical complexities: Addressing the gaps in respite care during transition from paediatrics to adult health care in Ontario.

Michelle Porepa1,2,3, Andrea Hoffman1,2,3,4, Maryanne Fellin3, Louise Kublick3.   

Abstract

Respite care is one integral component of the transition process from paediatric to adult health care, and is of particular importance to individuals with medical complexities. Numerous gaps that exist within the current system limit a child and family's ability to access quality respite care during a time when it is often most needed. Identifying and addressing these gaps in a systematic and collaborative way presents an opportunity to improve the quality of life for this vulnerable, ever growing population and their families.

Entities:  

Keywords:  Chronic disease; Disabled children; Family; Respite care; Transition to adult care

Year:  2017        PMID: 29479250      PMCID: PMC5804909          DOI: 10.1093/pch/pxx142

Source DB:  PubMed          Journal:  Paediatr Child Health        ISSN: 1205-7088            Impact factor:   2.253


  10 in total

1.  Transition to adult care for youth with special health care needs.

Authors: 
Journal:  Paediatr Child Health       Date:  2007-11       Impact factor: 2.253

Review 2.  Measuring the "triple aim" in transition care: a systematic review.

Authors:  Megan Prior; Margaret McManus; Patience White; Laurie Davidson
Journal:  Pediatrics       Date:  2014-12       Impact factor: 7.124

Review 3.  Children with medical complexity: a scoping review of interventions to support caregiver stress.

Authors:  H Edelstein; J Schippke; S Sheffe; S Kingsnorth
Journal:  Child Care Health Dev       Date:  2016-11-29       Impact factor: 2.508

4.  Transition from child-centered to adult health-care systems for adolescents with chronic conditions. A position paper of the Society for Adolescent Medicine.

Authors:  R W Blum; D Garell; C H Hodgman; T W Jorissen; N A Okinow; D P Orr; G B Slap
Journal:  J Adolesc Health       Date:  1993-11       Impact factor: 5.012

Review 5.  Children with medical complexity: an emerging population for clinical and research initiatives.

Authors:  Eyal Cohen; Dennis Z Kuo; Rishi Agrawal; Jay G Berry; Santi K M Bhagat; Tamara D Simon; Rajendu Srivastava
Journal:  Pediatrics       Date:  2011-02-21       Impact factor: 7.124

6.  Promoting independence for children on long-term ventilation.

Authors:  Sue Lawrence
Journal:  Nurs Child Young People       Date:  2011-12

7.  Family needs of parents of children and youth with cerebral palsy.

Authors:  R J Palisano; N Almarsi; L A Chiarello; M N Orlin; A Bagley; J Maggs
Journal:  Child Care Health Dev       Date:  2009-11-30       Impact factor: 2.508

8.  Different meanings of respite: a study of parents, nurses and social workers caring for children with complex needs.

Authors:  H MacDonald; P Callery
Journal:  Child Care Health Dev       Date:  2004-05       Impact factor: 2.508

9.  Frequency and determinants of formal respite service use among caregivers of children with cerebral palsy in Ontario.

Authors:  G Damiani; P Rosenbaum; M Swinton; D Russell
Journal:  Child Care Health Dev       Date:  2004-01       Impact factor: 2.508

10.  'Jumping through hoops': parents' experiences with seeking respite care for children with special needs.

Authors:  J L Doig; J D McLennan; L Urichuk
Journal:  Child Care Health Dev       Date:  2009-03       Impact factor: 2.508

  10 in total
  1 in total

1.  Identifying children with medical complexity in administrative datasets in a Canadian context: study protocol.

Authors:  Holly McCulloch; Sydney Breneol; Samuel A Stewart; Sandra Magalhaes; Mari Somerville; Jordan Sheriko; Shauna Best; Stacy Burgess; Elizabeth Jeffers; Mary-Ann Standing; Sarah King; Julie Clegg; Janet A Curran
Journal:  BMJ Open       Date:  2022-03-18       Impact factor: 2.692

  1 in total

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