Literature DB >> 29457295

"Something that happens at home and stays at home": An exploration of the lived experience of young carers in Western Australia.

Emma McDougall1, Moira O'Connor1, Joel Howell1.   

Abstract

There are approximately 350,000 young carers in Australia, yet their experience is not well understood. Young carers face adversities and disenfranchisement by being a young person in a caring role, and the role can affect other areas of their lives. We explored the lived experiences of young carers, aged 14-25 years (N = 13), from Western Australia through in-depth semi-structured interviews. A phenomenological approach was adopted. A thematic analysis of the transcribed interview data revealed four key themes. "Lessons from the experience" articulates the perceived benefits of the role and the themes: "navigating competing demands," "desire for normalcy" and "lost in the system" capture the struggles and complexities associated with being a young carer. Although there are challenges to being a young carer, it is something that young carers report can be beneficial and something that is done for those they love.
© 2018 John Wiley & Sons Ltd.

Entities:  

Keywords:  costs and benefits of care; hidden carer; informal care; lived experience; young carer

Mesh:

Year:  2018        PMID: 29457295     DOI: 10.1111/hsc.12547

Source DB:  PubMed          Journal:  Health Soc Care Community        ISSN: 0966-0410


  5 in total

Review 1.  The Young Carers' Journey: A Systematic Review and Meta Ethnography.

Authors:  Marianne Saragosa; Melissa Frew; Shoshana Hahn-Goldberg; Ani Orchanian-Cheff; Howard Abrams; Karen Okrainec
Journal:  Int J Environ Res Public Health       Date:  2022-05-10       Impact factor: 4.614

2.  Invisible population: Understanding recruitment barriers of a nurse-led support programme for families with caregiving children in Austria.

Authors:  Martin Nagl-Cupal; Julia Hauprich
Journal:  Nurs Open       Date:  2020-04-16

3.  A Qualitative Exploration of Seriously Ill Patients' Experiences of Goals of Care Discussions in Australian Hospital Settings.

Authors:  Moira O'Connor; Kaaren J Watts; Warren D Kilburn; Kitty Vivekananda; Claire E Johnson; Sharon Keesing; Georgia K B Halkett; Josephine Shaw; Valerie Colgan; Kevin Yuen; Renate Jolly; Simon C Towler; Anupam Chauhan; Margherita Nicoletti; Anton D Leonard
Journal:  J Gen Intern Med       Date:  2020-10-09       Impact factor: 5.128

4.  The emotional and mental health needs of young carers: what psychiatry can do.

Authors:  Roswitha Dharampal; Cornelius Ani
Journal:  BJPsych Bull       Date:  2020-06

5.  Psychosocial resources contributing to resilience in Austrian young carers-A study using photo novella.

Authors:  Martin Matzka; Martin Nagl-Cupal
Journal:  Res Nurs Health       Date:  2020-10-30       Impact factor: 2.228

  5 in total

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