| Literature DB >> 29437862 |
R Paul Boesch1, Karthik Balakrishnan2, Sari Acra3, Dan T Benscoter4, Shelagh A Cofer2, Joseph M Collaco5, John P Dahl6, Cori L Daines7, Alessandro DeAlarcon4, Emily M DeBoer8, Robin R Deterding8, Joel A Friedlander8, Benjamin D Gold9, Rayna M Grothe2, Catherine K Hart4, Mikhail Kazachkov10, Maureen A Lefton-Greif5, Claire Kane Miller4, Paul E Moore3, Scott Pentiuk4, Stacey Peterson-Carmichael6, Joseph Piccione11, Jeremy D Prager8, Philip E Putnam4, Rachel Rosen12, Michael J Rutter4, Matthew J Ryan11, Margaret L Skinner5, Cherie Torres-Silva4, Christopher T Wootten3, Karen B Zur11, Robin T Cotton4, Robert E Wood4.
Abstract
Aerodigestive programs provide coordinated interdisciplinary care to pediatric patients with complex congenital or acquired conditions affecting breathing, swallowing, and growth. Although there has been a proliferation of programs, as well as national meetings, interest groups and early research activity, there is, as of yet, no consensus definition of an aerodigestive patient, standardized structure, and functions of an aerodigestive program or a blueprint for research prioritization. The Delphi method was used by a multidisciplinary and multi-institutional panel of aerodigestive providers to obtain consensus on 4 broad content areas related to aerodigestive care: (1) definition of an aerodigestive patient, (2) essential construct and functions of an aerodigestive program, (3) identification of aerodigestive research priorities, and (4) evaluation and recognition of aerodigestive programs and future directions. After 3 iterations of survey, consensus was obtained by either a supermajority of 75% or stability in median ranking on 33 of 36 items. This included a standard definition of an aerodigestive patient, level of participation of specific pediatric disciplines in a program, essential components of the care cycle and functions of the program, feeding and swallowing assessment and therapy, procedural scope and volume, research priorities and outcome measures, certification, coding, and funding. We propose the first consensus definition of the aerodigestive care model with specific recommendations regarding associated personnel, infrastructure, research, and outcome measures. We hope that this may provide an initial framework to further standardize care, develop clinical guidelines, and improve outcomes for aerodigestive patients.Entities:
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Year: 2018 PMID: 29437862 DOI: 10.1542/peds.2017-1701
Source DB: PubMed Journal: Pediatrics ISSN: 0031-4005 Impact factor: 7.124