Literature DB >> 29429856

eHealth interventions for family carers of people with long term illness: A promising approach?

Jacqueline Sin1, Claire Henderson2, Debbie Spain3, Victoria Cornelius4, Tao Chen5, Steve Gillard6.   

Abstract

Family carers of people who have long term illness often experience physical and mental health morbidities, and burden. While there is good evidence to suggest that carers benefit from psychosocial interventions, these have primarily been delivered via face-to-face individual or group-formats. eHealth interventions offer a novel, accessible and self-paced approach to care delivery. Whether these are effective for carers' wellbeing has been little explored. This paper reports the first comprehensive systematic review in this area. A total of 78 studies, describing 62 discrete interventions, were identified. Interventions commonly aimed to promote carers' knowledge, self-efficacy, caregiving appraisal, and reduce global health morbidities. Interventions were offered to carers of people with a wide range of long term illness; dementia has been the most researched area, as reported in 40% of studies. Clinical and methodological heterogeneity in interventions precluded meta-analyses, and so data were analysed narratively. The most popular approach has comprised psychoeducational interventions delivered via an enriched online environment with supplementary modes of communication, such as network support with professionals and peers. Overall, carers appreciate the flexibility and self-paced nature of eHealth interventions, with high rates of satisfaction and acceptability. More studies using robust designs are needed to extend the evidence base.
Copyright © 2018 The Authors. Published by Elsevier Ltd.. All rights reserved.

Entities:  

Keywords:  Carers - eHealth/e-health/mHealth/m-health - online/web-based/internet; Family; Interventions - long term/chronic illness

Mesh:

Year:  2018        PMID: 29429856     DOI: 10.1016/j.cpr.2018.01.008

Source DB:  PubMed          Journal:  Clin Psychol Rev        ISSN: 0272-7358


  15 in total

1.  A web-based, peer-supported self-management intervention to reduce distress in relatives of people with psychosis or bipolar disorder: the REACT RCT.

Authors:  Fiona Lobban; Nadia Akers; Duncan Appelbe; Rossella Iraci Capuccinello; Lesley Chapman; Lizzi Collinge; Susanna Dodd; Sue Flowers; Bruce Hollingsworth; Mahsa Honary; Sonia Johnson; Steven H Jones; Ceu Mateus; Barbara Mezes; Elizabeth Murray; Katerina Panagaki; Naomi Rainford; Heather Robinson; Anna Rosala-Hallas; William Sellwood; Andrew Walker; Paula R Williamson
Journal:  Health Technol Assess       Date:  2020-06       Impact factor: 4.014

2.  Feasibility of implementing an electronic social support and resource visualization tool for caregivers in a neuro-oncology clinic.

Authors:  Maija Reblin; Dana Ketcher; Peter Forsyth; Eduardo Mendivil; Lauren Kane; Justin Pok; Miriah Meyer; Yelena P Wu; Jim Agutter
Journal:  Support Care Cancer       Date:  2018-06-12       Impact factor: 3.603

3.  A Systematic Review of eHealth Interventions Addressing HIV/STI Prevention Among Men Who Have Sex With Men.

Authors:  Long Hoang Nguyen; Bach Xuan Tran; Luis E C Rocha; Huong Lan Thi Nguyen; Cui Yang; Carl A Latkin; Anna Thorson; Susanne Strömdahl
Journal:  AIDS Behav       Date:  2019-09

4.  Care organising technologies and the post-phenomenology of care: An ethnographic case study.

Authors:  Sara E Shaw; Gemma Hughes; Sue Hinder; Stephany Carolan; Trisha Greenhalgh
Journal:  Soc Sci Med       Date:  2020-04-13       Impact factor: 4.634

5.  Review and Selection of Online Resources for Carers of Frail Adults or Older People in Five European Countries: Mixed-Methods Study.

Authors:  Roberta Papa; Areti Efthymiou; Giovanni Lamura; Flavia Piccinini; Giulia Onorati; Evridiki Papastavrou; Theologia Tsitsi; Giulia Casu; Licia Boccaletti; Alessandra Manattini; Rita Seneca; Carlos Vaz de Carvalho; Rita Durão; Francesco Barbabella; Frida Andréasson; Lennart Magnusson; Elizabeth Hanson
Journal:  JMIR Mhealth Uhealth       Date:  2020-06-17       Impact factor: 4.773

6.  Implementation of e-mental health interventions for informal caregivers of adults with chronic diseases: a protocol for a mixed-methods systematic review with a qualitative comparative analysis.

Authors:  Chelsea Coumoundouros; Louise von Essen; Robbert Sanderman; Joanne Woodford
Journal:  BMJ Open       Date:  2020-06-21       Impact factor: 2.692

7.  Usability evaluation of an eHealth intervention for family carers of individuals affected by psychosis: A mixed-method study.

Authors:  Jacqueline Sin; Luke A Woodham; Claire Henderson; Elen Williams; Aurora Sesé Hernández; Steve Gillard
Journal:  Digit Health       Date:  2019-08-28

8.  Mental health and caregiving experiences of family carers supporting people with psychosis.

Authors:  J Sin; J Elkes; R Batchelor; C Henderson; S Gillard; L A Woodham; T Chen; A Aden; V Cornelius
Journal:  Epidemiol Psychiatr Sci       Date:  2021-01-08       Impact factor: 6.892

9.  Exploring the Perceived Usefulness and Ease of Use of a Personalized Web-Based Resource (Care Companion) to Support Informal Caring: Qualitative Descriptive Study.

Authors:  Amadea Turk; Emma Fairclough; Gillian Grason Smith; Benjamin Lond; Veronica Nanton; Jeremy Dale
Journal:  JMIR Aging       Date:  2019-08-20

10.  A Multicomponent eHealth Intervention for Family Carers for People Affected by Psychosis: A Coproduced Design and Build Study.

Authors:  Jacqueline Sin; Claire Henderson; Luke A Woodham; Aurora Sesé Hernández; Steve Gillard
Journal:  J Med Internet Res       Date:  2019-08-06       Impact factor: 5.428

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