| Literature DB >> 29408815 |
Mariam Kourime1, S Faisal Ahmed.
Abstract
Clinical and research networks for rare conditions are increasingly common nowadays. Given the rarity of many such conditions, there is a need to cover more conditions, yet there is also a need to sustain and improve the quality and effectiveness of existing networks. This review will discuss the qualities that are required by a virtual network using some international clinical and research networks that are currently active in the field of rare endocrine conditions affecting sex and adrenal development as exemplars.Keywords: Rare conditions; Rare diseases; Reference networks; Registries
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Year: 2018 PMID: 29408815 DOI: 10.1159/000486872
Source DB: PubMed Journal: Sex Dev ISSN: 1661-5425 Impact factor: 1.824