Literature DB >> 29393694

Rights language and disorders of consciousness: a call for advocacy.

Joseph J Fins1,2,3,4, Megan S Wright1,2,4.   

Abstract

Drawing upon sources in neuroethics, civil rights, and disability rights law, we argue for the reintegration of people with severe brain injury back into the nexus of their families and communities consistent with the Americans with Disabilities Act (ADA) and the UN Convention on the Rights of Persons with Disabilities, both of which call for the maximal integration of people with disability into society. To this end, we offer a rights-based argument to address the care of people with severe brain injury. Instead of viewing the provision of rehabilitation as a reimbursement issue, which it surely is, we argue that it can be productively understood as a question of civil rights for a population generally segregated from the medical mainstream and from society itself. Their segregation in the chronic care sector constitutes disrespect for persons, made all the more consequential because recent advances in brain injury rehabilitation make reintegration into civil society an aspirational, if not achievable goal.

Entities:  

Keywords:  Brain Injury; Disability and Civil Rights; Disorders of Consciousness; Medical Ethics; Neuroethics

Mesh:

Year:  2018        PMID: 29393694     DOI: 10.1080/02699052.2018.1430377

Source DB:  PubMed          Journal:  Brain Inj        ISSN: 0269-9052            Impact factor:   2.311


  5 in total

1.  Beyond Good and Evil: Doing Ethics in the Clinic. A Lecture Celebrating 25 Years of the Philip Hallie Lecture, College of Letters, Wesleyan University, November 2, 2018.

Authors:  Joseph J Fins
Journal:  J Relig Health       Date:  2019-04

2.  Withdrawal of Life-Sustaining Treatments in Perceived Devastating Brain Injury: The Key Role of Uncertainty.

Authors:  Christos Lazaridis
Journal:  Neurocrit Care       Date:  2019-02       Impact factor: 3.210

Review 3.  Ethical and legal considerations related to disorders of consciousness.

Authors:  Lauren Rissman; Erin Talati Paquette
Journal:  Curr Opin Pediatr       Date:  2020-12       Impact factor: 2.856

4.  The neuroethics of disorders of consciousness: a brief history of evolving ideas.

Authors:  Michael J Young; Yelena G Bodien; Joseph T Giacino; Joseph J Fins; Robert D Truog; Leigh R Hochberg; Brian L Edlow
Journal:  Brain       Date:  2021-12-16       Impact factor: 13.501

5.  The Neglect of Persons with Severe Brain Injury in the United States: An International Human Rights Analysis.

Authors:  Tamar Ezer; Megan S Wright; Joseph J Fins
Journal:  Health Hum Rights       Date:  2020-06
  5 in total

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