Literature DB >> 29368059

Lessons Learned in Clinical Research Recruitment of Immigrants and Minority Group Members with First-Episode Psychosis.

Mercedes Hernandez1, Richard Franco2, Alex Kopelowicz2, Maria Y Hernandez3, Yesenia Mejia4, Concepción Barrio5, Steven Regeser López6.   

Abstract

Recruitment of immigrants and racial and ethnic minorities with first-episode psychosis (FEP) for research studies presents numerous challenges. We describe methods used to recruit 43 U.S. Latinos with FEP and their family caregivers (n = 41) participating in a study to reduce duration of untreated psychosis. A key challenge was that patients were not continuing treatment at an outpatient clinic, as initially expected. To facilitate identification of patients prior to outpatient care, we collaborated with clinic and hospital administrators. Many patients and families were grappling with the aftermath of a hospitalization or adjusting to a diagnosis of a serious mental illness. A considerable amount of time was devoted to addressing participants' concerns and when possible, facilitating needed services. Our experience underscores the importance of establishing long-term relationships through multiple contacts with patients, families, and stakeholders to address recruitment barriers among underserved groups with FEP.

Entities:  

Keywords:  Engagement; Families; First-episode psychosis; Latinos; Recruitment

Mesh:

Substances:

Year:  2019        PMID: 29368059      PMCID: PMC6057854          DOI: 10.1007/s10903-018-0704-y

Source DB:  PubMed          Journal:  J Immigr Minor Health        ISSN: 1557-1912


  35 in total

1.  Negative pathways to psychiatric care and ethnicity: the bridge between social science and psychiatry.

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2.  Mode of onset of psychosis and family involvement in help-seeking as determinants of duration of untreated psychosis.

Authors:  Michael T Compton; Victoria H Chien; Amy S Leiner; Sandra M Goulding; Paul S Weiss
Journal:  Soc Psychiatry Psychiatr Epidemiol       Date:  2008-07-05       Impact factor: 4.328

3.  Successful recruitment to a study of first-episode psychosis by clinicians: a qualitative account of outcomes and influences on process.

Authors:  Sue Patterson; Michael Duhig; Melissa Connell; James Scott
Journal:  J Ment Health       Date:  2014-06-20

4.  Towards the sustainability of information campaigns: training Promotores to increase the psychosis literacy of Spanish-speaking communities.

Authors:  Vanessa Calderon; Yesenia Mejia; María del Carmen Lara-Muñoz; Joanna Segoviano; Quetzalli Castro; Ava Casados; Steven Regeser López
Journal:  Soc Psychiatry Psychiatr Epidemiol       Date:  2014-12-18       Impact factor: 4.328

5.  Correlates of past-year mental health service use among Latinos: results from the National Latino and Asian American Study.

Authors:  Margarita Alegría; Norah Mulvaney-Day; Meghan Woo; Maria Torres; Shan Gao; Vanessa Oddo
Journal:  Am J Public Health       Date:  2006-11-30       Impact factor: 9.308

Review 6.  Cultural psychopathology: uncovering the social world of mental illness.

Authors:  S R López; P J Guarnaccia
Journal:  Annu Rev Psychol       Date:  2000       Impact factor: 24.137

Review 7.  Schizophrenia and migration: a meta-analysis and review.

Authors:  Elizabeth Cantor-Graae; Jean-Paul Selten
Journal:  Am J Psychiatry       Date:  2005-01       Impact factor: 18.112

Review 8.  Service Engagement in First-Episode Psychosis: Current Issues and Future Directions.

Authors:  Shalini Lal; Ashok Malla
Journal:  Can J Psychiatry       Date:  2015-08       Impact factor: 4.356

9.  Strategies to enhance patient recruitment and retention in research involving patients with a first episode of mental illness.

Authors:  Ivana Furimsky; Amy H Cheung; Carolyn S Dewa; Robert B Zipursky
Journal:  Contemp Clin Trials       Date:  2008-07-31       Impact factor: 2.226

10.  Ethnic disparities in use of public mental health case management services among patients with schizophrenia.

Authors:  Concepcion Barrio; Ann Marie Yamada; Richard L Hough; William Hawthorne; Piedad Garcia; Dilip V Jeste
Journal:  Psychiatr Serv       Date:  2003-09       Impact factor: 3.084

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  3 in total

1.  Family processes and duration of untreated psychosis among US Latinos.

Authors:  Mercedes Hernandez; Maria Y Hernandez; Daisy Lopez; Concepción Barrio; Diana Gamez; Steven R López
Journal:  Early Interv Psychiatry       Date:  2019-01-15       Impact factor: 2.732

2.  Methodological and Ethical Considerations in Research With Immigrant and Refugee Survivors of Intimate Partner Violence.

Authors:  Veronica P S Njie-Carr; Bushra Sabri; Jill T Messing; Allison Ward-Lasher; Crista E Johnson-Agbakwu; Catherine McKinley; Nicole Campion; Saltanat Childress; Joyell Arscott; Jacquelyn Campbell
Journal:  J Interpers Violence       Date:  2019-09-24

3.  Conducting Intervention Research With Immigrant Survivors of Intimate Partner Violence: Barriers and Facilitators of Recruitment and Retention.

Authors:  Bushra Sabri; Jennifer Lee; Jyoti Saha
Journal:  J Interpers Violence       Date:  2021-08-03
  3 in total

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