Literature DB >> 29355024

The transition of adolescents with juvenile idiopathic arthritis or epilepsy from paediatric health-care services to adult health-care services: A scoping review of the literature and a synthesis of the evidence.

Lauren Burke1, Jamie Kirkham1, Janine Arnott2, Victoria Gray3, Matthew Peak3, Michael W Beresford3.   

Abstract

Young people with long-term health conditions (LTCs) can face challenges when making the transition to adult health services. This paper sought to identify studies that assess and explore transitional care for young people with LTCs. Two conditions were used as exemplars: juvenile idiopathic arthritis (JIA) and epilepsy. A scoping review of the literature was conducted by using search terms to search for papers in English between 2001 and 2016 concerning transitional care on four databases. Qualitative papers were reviewed and synthesized using thematic analysis. Quantitative papers using health outcomes were also synthesized. Twenty-eight papers were selected for review. Despite the wealth of literature concerning aspects of transitional care that are key to a successful transition for young people with JIA or epilepsy, there is a paucity of outcomes that define 'successful' transition and consequently a lack of reliable research evaluating the effectiveness of transitional care interventions to support young people moving to adult health services.

Entities:  

Keywords:  Adolescence; epilepsy; juvenile idiopathic arthritis; transition; transitional care

Mesh:

Year:  2018        PMID: 29355024     DOI: 10.1177/1367493517753330

Source DB:  PubMed          Journal:  J Child Health Care        ISSN: 1367-4935            Impact factor:   1.979


  4 in total

1.  Defining Coordinated Care for People with Rare Conditions: A Scoping Review.

Authors:  Holly Walton; Emma Hudson; Amy Simpson; Angus I G Ramsay; Joe Kai; Stephen Morris; Alastair G Sutcliffe; Naomi J Fulop
Journal:  Int J Integr Care       Date:  2020-06-25       Impact factor: 5.120

2.  Training of adult psychiatrists and child and adolescent psychiatrists in europe: a systematic review of training characteristics and transition from child/adolescent to adult mental health services.

Authors:  Frederick Russet; Veronique Humbertclaude; Gwen Dieleman; Katarina Dodig-Ćurković; Gaelle Hendrickx; Vlatka Kovač; Fiona McNicholas; Athanasios Maras; Santosh Paramala; Moli Paul; Ulrike M E Schulze; Giulia Signorini; Cathy Street; Priya Tah; Helena Tuomainen; Swaran P Singh; Sabine Tremmery; Diane Purper-Ouakil
Journal:  BMC Med Educ       Date:  2019-06-13       Impact factor: 2.463

3.  Development and validation of the RACER (Readiness for Adult Care in Rheumatology) transition instrument in youth with juvenile idiopathic arthritis.

Authors:  Lynn Spiegel; Lori Tucker; Karen Watanabe Duffy; Chitra Lalloo; Amos Hundert; Josiane Bourre-Tessier; Elizabeth Hazel; Nadia Luca; Dianne Mosher; Cynthia Nguyen; Elizabeth Stringer; Charles Victor; Jennifer Stinson
Journal:  Pediatr Rheumatol Online J       Date:  2021-06-05       Impact factor: 3.054

Review 4.  Pediatric rheumatology: addressing the transition to adult-orientated health care.

Authors:  Sara Sabbagh; Tova Ronis; Patience H White
Journal:  Open Access Rheumatol       Date:  2018-07-03
  4 in total

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