Literature DB >> 29353499

[Who should decide at the end of life? International practice of advance care planning and possibilities for adaptation in Hungary].

Csilla Busa1, Judit Zeller2, Ágnes Csikós3.   

Abstract

At the advanced stage of serious illness, end-of-life decisions need to be made. Advance care planning offers patients the right to decide on their own future care when independent decision-making is no longer possible. The most complex and effective advance care plans include patients' preferred or refused medical treatments, care-related wishes, and individual values as well. Advance care planning can improve end-of-life care and contribute to higher satisfaction. It can also reduce distress in relatives and the costs of care. Patients' preferences provide a guidance for professional care. A number of studies have identified the benefits of advance care planning, and it has been included in guidelines. Potential barriers to advance care planning could be as follows: taboo of talking about dying, negative attitudes of patients and relatives, poor knowledge of professional caregivers, lack of necessary circumstances to have the conversation. Advance care planning is almost unknown in Hungary, although it is possible to refuse certain types of treatments. Cooperation of professionals, development of gradual and postgraduate trainings, and improvement of social awareness are also needed so that advance care planning can be adapted in Hungary. Orv Hetil. 2018; 159(4): 131-140.

Entities:  

Keywords:  advance care planning; advance directives; betegelégedettség; betegközpontú ellátás; caregiver satisfaction; ellátás előzetes tervezése; előzetes egészségügyi rendelkezés; end-of-life care; end-of-life preferences; hozzátartozói elégedettség; patient satisfaction; patient-centered care; életvégi ellátás; életvégi preferenciák

Mesh:

Year:  2018        PMID: 29353499     DOI: 10.1556/650.2018.30937

Source DB:  PubMed          Journal:  Orv Hetil        ISSN: 0030-6002            Impact factor:   0.540


  2 in total

1.  Who should talk with patients about their end-of-life care wishes? A nationwide survey of the Hungarian population.

Authors:  Csilla Busa; Eva Pozsgai; Judit Zeller; Agnes Csikos
Journal:  Scand J Prim Health Care       Date:  2022-04-04       Impact factor: 3.147

2.  Preferences in end of life care substantially differ between the Netherlands and Japan: Results from a cross-sectional survey study.

Authors:  A Stef Groenewoud; Noriko Sasaki; Gert P Westert; Yuichi Imanaka
Journal:  Medicine (Baltimore)       Date:  2020-10-30       Impact factor: 1.817

  2 in total

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