Literature DB >> 29339858

Examining How the Perception of Health Can Impact Participation and Autonomy Among Adults with Spinal Cord Injury.

Jennifer A Piatt1, Marieke Van Puymbroeck2, Melissa Zahl3, Jeffrey P Rosenbluth4, Mary Sara Wells4.   

Abstract

Background: Studies examining participation as defined by the International Classification of Functioning, Disability and Health (ICF) as well as autonomy among the spinal cord injury population (SCI) are only starting to emerge. Little research has looked at how this population perceives their health status and the role this plays in active participation within their lives. Objective: This exploratory study was developed to determine whether the perception of health has an impact on participation and autonomy among adults with SCI.
Methods: A convenience sample of adults with SCI currently receiving outpatient services from a rehabilitation hospital completed the online questionnaire. Forty-two subjects responded and were categorized into 2 groups: Group 1, positive perceived health, and Group 2, negative perceived health. The sample completed the Impact on Autonomy and Participation (IPA) that has 5 subscales (autonomy indoors, family role, autonomy outdoors, social life, and work/education) and demographic questions.
Results: Multivariate analysis of variance (MANOVA) revealed that perceived health had a significant impact on family roles, autonomy outdoors, social life, and work/education. Perceived health did not have a significant impact on autonomy indoors.
Conclusion: The perception of health may have an impact on participation and autonomy within the areas of family role, outdoors, work/education, and social life. Implications for rehabilitation are included.

Entities:  

Keywords:  autonomy; community-based rehabilitation; participation; perceived health; spinal cord injury

Year:  2016        PMID: 29339858      PMCID: PMC4981011          DOI: 10.1310/sci2203-165

Source DB:  PubMed          Journal:  Top Spinal Cord Inj Rehabil        ISSN: 1082-0744


  29 in total

1.  Factors associated with quality of life among people with spinal cord injury: application of the International Classification of Functioning, Disability and Health model.

Authors:  Feng-Hang Chang; Yen-Ho Wang; Yuh Jang; Chih-Wen Wang
Journal:  Arch Phys Med Rehabil       Date:  2012-06-21       Impact factor: 3.966

2.  Perceived participation, experiences from persons with spinal cord injury in their transition period from hospital to home.

Authors:  Dominique Van de Veldea; Piet Bracke; Geert Van Hove; Staffan Josephsson; Guy Vanderstraeten
Journal:  Int J Rehabil Res       Date:  2010-12       Impact factor: 1.479

3.  Care needs of persons with long-term spinal cord injury living at home in the Netherlands.

Authors:  M A van Loo; M W M Post; J H A Bloemen; F W A van Asbeck
Journal:  Spinal Cord       Date:  2009-11-03       Impact factor: 2.772

4.  Psychometric properties of the Impact on Participation and Autonomy Questionnaire.

Authors:  M Cardol; R J de Haan; B A de Jong; G A van den Bos; I J de Groot
Journal:  Arch Phys Med Rehabil       Date:  2001-02       Impact factor: 3.966

Review 5.  Social and community participation following spinal cord injury: a critical review.

Authors:  Linda Barclay; Rachael McDonald; Primrose Lentin
Journal:  Int J Rehabil Res       Date:  2015-03       Impact factor: 1.479

6.  Measuring community integration after spinal cord injury: validation of the Sydney psychosocial reintegration scale and community integration measure.

Authors:  Annelies De Wolf; Amanda Lane-Brown; Robyn L Tate; James Middleton; Ian D Cameron
Journal:  Qual Life Res       Date:  2010-06-27       Impact factor: 4.147

7.  Self-reported mental health in youth with cerebral palsy and associations to recurrent musculoskeletal pain.

Authors:  Kjersti Ramstad; Jon Håvard Loge; Reidun Jahnsen; Trond H Diseth
Journal:  Disabil Rehabil       Date:  2014-04-30       Impact factor: 3.033

8.  Examining barriers and supports to community living and participation after a stroke from a participatory action research approach.

Authors:  Joy Hammel; Robin Jones; Andrea Gossett; Elizabeth Morgan
Journal:  Top Stroke Rehabil       Date:  2006       Impact factor: 2.119

9.  Worsening trends in adult health-related quality of life and self-rated health-United States, 1993-2001.

Authors:  Matthew M Zack; David G Moriarty; Donna F Stroup; Earl S Ford; Ali H Mokdad
Journal:  Public Health Rep       Date:  2004 Sep-Oct       Impact factor: 2.792

10.  Self-rated health in persons with spinal cord injury: relationship of secondary conditions, function and health status.

Authors:  Gloria L Krahn; Rie Suzuki; Willi Horner-Johnson
Journal:  Qual Life Res       Date:  2009-04-19       Impact factor: 4.147

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  3 in total

1.  Applying the ICF model in adult spinal deformity: disability in terms of participation should be incorporated in the care pathway.

Authors:  Thijs Ackermans; Hannes Tytgat; Erica Beaucage-Gauvreau; Pieter Severijns; Thomas Overbergh; Kristel van de Loock; Sebastiaan Schelfaut; Karl Zabjek; Lennart Scheys; Lieven Moke
Journal:  Spine Deform       Date:  2022-10-19

2.  Personal Perception of Health in Urban Women of Low Socioeconomic Status: A Qualitative Study.

Authors:  Kimberly Paige Rathbun; Victoria Loerzel; Joellen Edwards
Journal:  J Prim Care Community Health       Date:  2020 Jan-Dec

3.  Systolic and diastolic function in chronic spinal cord injury.

Authors:  Bonnie Legg Ditterline; Shelley Wade; Beatrice Ugiliweneza; Narayana Sarma V Singam; Susan J Harkema; Marcus F Stoddard; Glenn A Hirsch
Journal:  PLoS One       Date:  2020-07-27       Impact factor: 3.240

  3 in total

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