Sandra Luzinete Felix de Freitas1, Maria Lucia Ivo1, Maria Stella Figueiredo2, Maria Auxiliadora de Souza Gerk3, Cristina Brandt Nunes3, Fernando de Freitas Monteiro4. 1. Universidade Federal de Mato Grosso do Sul, Postgraduate Program in Health and Development in the Central-West Region. Campo Grande, Mato Grosso do Sul, Brazil. 2. Universidade Federal de São Paulo, Department of Clinical and Experimental Oncology. São Paulo, Brazil. 3. Universidade Federal de Mato Grosso do Sul, Center for Biological and Health Sciences, Undergraduate Program in Nursing. Campo Grande, Mato Grosso do Sul, Brazil. 4. Associação Beneficente de Campo Grande, Medical Residency in Psychiatry. Campo Grande, Mato Grosso do Sul, Brazil.
Abstract
OBJECTIVE: To identify the available evidence in the literature on health-related quality of life in adults with sickle cell disease. METHOD: integrative review of MEDLINE, CUMED, LILACS and SciELO databases, from articles developed in this area, published between 2005 and 2015, in English, Portuguese or Spanish. RESULTS: 22 articles were included, six scales were used to evaluate health-related quality of life scores: three generic and three specific. No specific scale for adults with sickle cell disease has been adapted to Brazilian Portuguese so far. Patients affected by frequent painful crises, with low adherence to treatment, had a compromised quality of life. CONCLUSION: Selected studies have shown that patients with sickle cell disease have worse scores than the general population. These indicators should be instrumental to the nurse in the proposal of interventions and strategies of assistance and socio-educational, with a view to improving the quality of life of this clientele.
OBJECTIVE: To identify the available evidence in the literature on health-related quality of life in adults with sickle cell disease. METHOD: integrative review of MEDLINE, CUMED, LILACS and SciELO databases, from articles developed in this area, published between 2005 and 2015, in English, Portuguese or Spanish. RESULTS: 22 articles were included, six scales were used to evaluate health-related quality of life scores: three generic and three specific. No specific scale for adults with sickle cell disease has been adapted to Brazilian Portuguese so far. Patients affected by frequent painful crises, with low adherence to treatment, had a compromised quality of life. CONCLUSION: Selected studies have shown that patients with sickle cell disease have worse scores than the general population. These indicators should be instrumental to the nurse in the proposal of interventions and strategies of assistance and socio-educational, with a view to improving the quality of life of this clientele.
Authors: Sheila Raposo Galindo; Manoel Henrique da Nóbrega Marinho; Robert J Gatchel; Tatiana de Paula Santana da Silva; Eduardo Henrique Soares Viana; Selene Cordeiro Vasconcelos; Murilo Duarte da Costa Lima Journal: BMC Med Res Methodol Date: 2019-09-23 Impact factor: 4.615
Authors: P F Blatyta; S Kelly; T T Goncalez; A B Carneiro-Proietti; T Salomon; C Miranda; E Sabino; L Preiss; C Maximo; P Loureiro; B Custer; C de Almeida-Neto Journal: BMC Public Health Date: 2020-10-23 Impact factor: 3.295