Literature DB >> 29295221

The Portal of Medical Data Models: Where Have We Been and Where Are We Going?

Sophia Geßner1, Philipp Neuhaus1, Julian Varghese1, Philipp Bruland1, Alexandra Meidt1, Iñaki Soto-Rey1, Michael Storck1, Justin Doods1, Martin Dugas1.   

Abstract

To address current key problems of medical documentation: lack of transparency, overwhelming amount of medical contents to be documented and missing interoperability, the Portal of Medical Data Models (http://medical-data-models.org/) was established in 2012. Constantly evolving, four years later, the portal displays more than 8900 medical data models with more than 250000 items, of which 84 % have been semantically annotated with UMLS codes to support interoperability. Giving an update on new functions and contents of the portal, two additional export formats have been implemented, allowing the reuse of forms such as HL7's framework Fast Health Interoperability Resources (FHIR) Questionnaires, as well as the OpenDataKit format. Future projects include the implementation of an ODMtoOpenClinica converter, as well as supporting the reuse of forms with Apple's ResearchKit and Android's ResearchStack.

Entities:  

Keywords:  Clinical Trial; Semantics; Surveys and Questionnaires

Mesh:

Year:  2017        PMID: 29295221

Source DB:  PubMed          Journal:  Stud Health Technol Inform        ISSN: 0926-9630


  3 in total

Review 1.  HL7 FHIR-based tools and initiatives to support clinical research: a scoping review.

Authors:  Stephany N Duda; Nan Kennedy; Douglas Conway; Alex C Cheng; Viet Nguyen; Teresa Zayas-Cabán; Paul A Harris
Journal:  J Am Med Inform Assoc       Date:  2022-08-16       Impact factor: 7.942

2.  CDEGenerator: an online platform to learn from existing data models to build model registries.

Authors:  Julian Varghese; Michael Fujarski; Stefan Hegselmann; Philipp Neuhaus; Martin Dugas
Journal:  Clin Epidemiol       Date:  2018-08-10       Impact factor: 4.790

3.  Facilitating harmonized data quality assessments. A data quality framework for observational health research data collections with software implementations in R.

Authors:  Carsten Oliver Schmidt; Stephan Struckmann; Cornelia Enzenbach; Achim Reineke; Jürgen Stausberg; Stefan Damerow; Marianne Huebner; Börge Schmidt; Willi Sauerbrei; Adrian Richter
Journal:  BMC Med Res Methodol       Date:  2021-04-02       Impact factor: 4.615

  3 in total

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