Literature DB >> 29283872

Education, Training, and Mentorship of Caregivers of Canadians Experiencing a Life-Limiting Illness.

Allison M Williams1.   

Abstract

BACKGROUND: Research suggests that caregiver preparedness is essential to minimizing the negative impacts of caregiving. Not being prepared is associated with fear, anxiety, stress, and feelings of insufficiency/uncertainty specific to the caregiver role.
OBJECTIVE: To determine what resources are required to ensure adequate education, training, and mentorship for caregivers of Canadians experiencing a life-limiting illness.
DESIGN: Informed by the Ispos Reid survey, the methods for this article involved a rapid literature review that addressed caregiver experiences, needs and issues as they related to health, quality of life, and well-being.
RESULTS: Given the burden of care, caregiver education, training, and mentorship are suggested to be best met through the palliative navigator model, wherein the patient-caregiver dyad is recognized as an integrated unit of care.
CONCLUSIONS: The palliative navigator approach is a key role in the education, training, and mentorship of caregivers.

Entities:  

Keywords:  navigator; palliative caregivers; patient–caregiver dyad

Mesh:

Year:  2018        PMID: 29283872      PMCID: PMC5733737          DOI: 10.1089/jpm.2017.0393

Source DB:  PubMed          Journal:  J Palliat Med        ISSN: 1557-7740            Impact factor:   2.947


  30 in total

1.  Can assessing caregiver needs and activating community networks improve caregiver-defined outcomes? A single-blind, quasi-experimental pilot study: community facilitator pilot.

Authors:  Aine Greene; Sanchia Aranda; Jennifer J Tieman; Belinda Fazekas; David C Currow
Journal:  Palliat Med       Date:  2011-09-19       Impact factor: 4.762

2.  A critical analysis of health promotion and 'empowerment' in the context of palliative family care-giving.

Authors:  Kelli Stajduhar; Laura Funk; Eva Jakobsson; Joakim Ohlén
Journal:  Nurs Inq       Date:  2010-09       Impact factor: 2.393

Review 3.  Part 1: Home-based family caregiving at the end of life: a comprehensive review of published quantitative research (1998-2008).

Authors:  Ki Stajduhar; L Funk; C Toye; Ge Grande; S Aoun; Cj Todd
Journal:  Palliat Med       Date:  2010-06-18       Impact factor: 4.762

4.  Effectiveness of a psychoeducational intervention group program in the reduction of the burden experienced by caregivers of patients with dementia: the EDUCA-II randomized trial.

Authors:  Manuel Martín-Carrasco; Ana Isabel Domínguez-Panchón; Eduardo González-Fraile; Paula Muñoz-Hermoso; Javier Ballesteros
Journal:  Alzheimer Dis Assoc Disord       Date:  2014 Jan-Mar       Impact factor: 2.703

5.  The development and evaluation of a multimedia resource for family carers of patients receiving palliative care: a consumer-led project.

Authors:  Kristina Thomas; Gaye Moore
Journal:  Palliat Support Care       Date:  2015-06

6.  Development of a Carer Support Needs Assessment Tool (CSNAT) for end-of-life care practice at home: a qualitative study.

Authors:  Gail Ewing; Gunn Grande
Journal:  Palliat Med       Date:  2012-03-26       Impact factor: 4.762

7.  A pilot randomized, controlled trial of the effectiveness of a psychoeducational intervention on family caregivers of patients with advanced cancer.

Authors:  Mabel Leow; Sally Chan; Moon Chan
Journal:  Oncol Nurs Forum       Date:  2015-03       Impact factor: 2.172

8.  What family caregivers learn when providing care at the end of life: a qualitative secondary analysis of multiple datasets.

Authors:  Laura M Funk; Kelli I Stajduhar; Linda Outcalt
Journal:  Palliat Support Care       Date:  2014-02-13

9.  Essential knowledge for family caregivers: a qualitative study.

Authors:  Jennifer K Angelo; Richard Egan; Kate Reid
Journal:  Int J Palliat Nurs       Date:  2013-08

10.  "It's alright to ask for help": findings from a qualitative study exploring the information and support needs of family carers at the end of life.

Authors:  Emily Harrop; Anthony Byrne; Annmarie Nelson
Journal:  BMC Palliat Care       Date:  2014-04-17       Impact factor: 3.234

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  2 in total

Review 1.  Support for Informal Caregivers in Canada: A Scoping Review from a Hospice and Palliative/End-of-Life Care Lens.

Authors:  Andrew Wan; Elaine Lung; Ankita Ankita; Zoey Li; Carol Barrie; Sharon Baxter; Lisa Benedet; Mehrnoush Noush Mirhosseini; Raza M Mirza; Karla Thorpe; Christina Vadeboncoeur; Christopher A Klinger
Journal:  J Palliat Care       Date:  2022-02-24       Impact factor: 1.980

Review 2.  Caring for the caregiver: a systematic review characterising the experience of caregivers of older adults with advanced cancers.

Authors:  Jacob J Adashek; Ishwaria M Subbiah
Journal:  ESMO Open       Date:  2020-09
  2 in total

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