Literature DB >> 29281562

Moral frames for lives worth living: Managing the end of life with dementia.

Natashe Lemos Dekker1.   

Abstract

Narratives that frame the end of life with dementia as undignified reveal moral claims on which lives are considered worth living. These claims are deeply rooted in the medicalization of death and its appeal to dignity. Drawing from ethnographic fieldwork in nursing homes for people with dementia in The Netherlands, I demonstrate how the end of life with dementia is managed through such moral frames. Specifically, I elaborate on the production of lives (not) worth living and explore how family members welcomed the death of a loved one with dementia. I argue that the welcoming of death is not an act of indifference but can be seen as a form of care.

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Year:  2018        PMID: 29281562     DOI: 10.1080/07481187.2017.1396644

Source DB:  PubMed          Journal:  Death Stud        ISSN: 0748-1187


  4 in total

1.  Cross-cultural conceptualization of a good end of life with dementia: a qualitative study.

Authors:  Mayumi Nishimura; Karen Harrison Dening; Elizabeth L Sampson; Edison Iglesias de Oliveira Vidal; Wilson Correia de Abreu; Sharon Kaasalainen; Yvonne Eisenmann; Laura Dempsey; Kirsten J Moore; Nathan Davies; Sascha R Bolt; Judith M M Meijers; Natashe Lemos Dekker; Mitsunori Miyashita; Miharu Nakanishi; Takeo Nakayama; Jenny T van der Steen
Journal:  BMC Palliat Care       Date:  2022-06-08       Impact factor: 3.113

2.  Trends in quality of care and dying perceived by family caregivers of nursing home residents with dementia 2005-2019.

Authors:  Maartje S Klapwijk; Sascha R Bolt; Jannie A Boogaard; Maud Ten Koppel; Marie-José He Gijsberts; Carolien van Leussen; B Anne-Mei The; Judith Mm Meijers; Jos Mga Schols; H Roeline W Pasman; Bregje D Onwuteaka-Philipsen; Luc Deliens; Lieve Van den Block; Bart Mertens; Henrica Cw de Vet; Monique Aa Caljouw; Wilco P Achterberg; Jenny T van der Steen
Journal:  Palliat Med       Date:  2021-08-28       Impact factor: 4.762

Review 3.  Dignifying and undignifying aspects of care for people with dementia: a narrative review.

Authors:  Wendy van der Geugten; Anne Goossensen
Journal:  Scand J Caring Sci       Date:  2019-11-21

4.  Identity work of children with a parent with early-onset dementia in the Netherlands: Giving meaning through narrative construction.

Authors:  Silke Hoppe
Journal:  Dementia (London)       Date:  2021-08-11
  4 in total

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