Literature DB >> 29280538

'You're there because you are unprofessional': patient and public involvement as liminal knowledge spaces.

Kath Maguire1, Nicky Britten1.   

Abstract

Patient and public involvement in health research and care has been repeatedly theorised using the metaphor of spaces, knowledge spaces and participatory citizenship spaces. Drawing on data from a three year qualitative study of people involved in health research with organisations across England, this article explores where these spaces fit in a wider social, political and historical landscape. It outlines a theme recurring frequently in the study data: a unified public/patient/service-user perspective in opposition to a professional/clinical/academic view. This is discussed in relation to Habermas's division between the lifeworld and system. Patient and public involvement is mapped as spaces between these spheres, therefore between the social norms pertaining to them. In this way, involvement spaces are seen as liminal, in-between or threshold spaces; this concept provides us with new insights on both the opportunities and the conflicts that are integral in the ambiguous, complex interactions which take place in these spaces.
© 2017 Foundation for the Sociology of Health & Illness.

Entities:  

Keywords:  health services research; patient and public engagement; qualitative methods generally; social structure; social theory; user involvement

Mesh:

Year:  2017        PMID: 29280538     DOI: 10.1111/1467-9566.12655

Source DB:  PubMed          Journal:  Sociol Health Illn        ISSN: 0141-9889


  13 in total

1.  Metaphors of organizations in patient involvement programs: connections and contradictions.

Authors:  Paula Rowland; Carol Fancott; Julia Abelson
Journal:  J Health Organ Manag       Date:  2021-03-30

2.  'A limpet on a ship': Spatio-temporal dynamics of patient and public involvement in research.

Authors:  Stan Constantina Papoulias; Felicity Callard
Journal:  Health Expect       Date:  2021-03-21       Impact factor: 3.377

3.  The burden of proof: The process of involving young people in research.

Authors:  Gail Dovey-Pearce; Sophie Walker; Sophie Fairgrieve; Monica Parker; Tim Rapley
Journal:  Health Expect       Date:  2019-02-15       Impact factor: 3.377

4.  Public involvement in research about environmental change and health: A case study.

Authors:  Kath Maguire; Ruth Garside; Jo Poland; Lora E Fleming; Ian Alcock; Tim Taylor; Helen Macintyre; Gianni Lo Iacono; Andrew Green; Benedict W Wheeler
Journal:  Health (London)       Date:  2019-03

5.  Setting the research agenda for living with and beyond cancer with comorbid illness: reflections on a research prioritisation exercise.

Authors:  D Cavers; S Cunningham-Burley; E Watson; E Banks; C Campbell
Journal:  Res Involv Engagem       Date:  2020-04-29

6.  Patient and public involvement facilitators: Could they be the key to the NHS quality improvement agenda?

Authors:  Sarah Todd; Christine Coupland; Raymond Randall
Journal:  Health Expect       Date:  2020-02-05       Impact factor: 3.377

7.  Exploring a New Model of End-of-Life Care for Older People That Operates in the Space Between the Life World and the Healthcare System: A Qualitative Case Study.

Authors:  Steven Dodd; Nancy Preston; Sheila Payne; Catherine Walshe
Journal:  Int J Health Policy Manag       Date:  2020-08-01

8.  Patient and public involvement in randomised clinical trials: a mixed-methods study of a clinical trials unit to identify good practice, barriers and facilitators.

Authors:  Lucy Ellen Selman; Clare Clement; Margaret Douglas; Keith Douglas; Jodi Taylor; Chris Metcalfe; J Athene Lane; Jeremy Horwood
Journal:  Trials       Date:  2021-10-23       Impact factor: 2.279

9.  "An Active, Productive Life": Narratives of, and Through, Participation in Public and Patient Involvement in Health Research.

Authors:  Joanna Reynolds; Ruth Beresford
Journal:  Qual Health Res       Date:  2020-10-03

10.  Exploring patient and public involvement (PPI) and co-production approaches in mental health research: learning from the PARTNERS2 research programme.

Authors: 
Journal:  Res Involv Engagem       Date:  2020-09-21
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