| Literature DB >> 29280538 |
Kath Maguire1, Nicky Britten1.
Abstract
Patient and public involvement in health research and care has been repeatedly theorised using the metaphor of spaces, knowledge spaces and participatory citizenship spaces. Drawing on data from a three year qualitative study of people involved in health research with organisations across England, this article explores where these spaces fit in a wider social, political and historical landscape. It outlines a theme recurring frequently in the study data: a unified public/patient/service-user perspective in opposition to a professional/clinical/academic view. This is discussed in relation to Habermas's division between the lifeworld and system. Patient and public involvement is mapped as spaces between these spheres, therefore between the social norms pertaining to them. In this way, involvement spaces are seen as liminal, in-between or threshold spaces; this concept provides us with new insights on both the opportunities and the conflicts that are integral in the ambiguous, complex interactions which take place in these spaces.Entities:
Keywords: health services research; patient and public engagement; qualitative methods generally; social structure; social theory; user involvement
Mesh:
Year: 2017 PMID: 29280538 DOI: 10.1111/1467-9566.12655
Source DB: PubMed Journal: Sociol Health Illn ISSN: 0141-9889