Literature DB >> 29277149

Creation of Data Repositories to Advance Nursing Science.

Joseph Perazzo1,2, Margaret Rodriguez1, Jackson Currie1, Robert Salata1, Allison R Webel1.   

Abstract

Data repositories are a strategy in line with precision medicine and big data initiatives, and are an efficient way to maximize data utility and form collaborative research relationships. Nurse researchers are uniquely positioned to make a valuable contribution using this strategy. The purpose of this article is to present a review of the benefits and challenges associated with developing data repositories, and to describe the process we used to develop and maintain a data repository in HIV research. Systematic planning, data collection, synthesis, and data sharing have enabled us to conduct robust cross-sectional and longitudinal analyses with more than 200 people living with HIV. Our repository building has also led to collaboration and training, both in and out of our organization. We present a pragmatic and affordable way that nurse scientists can build and maintain a data repository, helping us continue to make to our understanding of health phenomena.

Entities:  

Keywords:  HIV; biological research; biorepository; data

Mesh:

Year:  2017        PMID: 29277149      PMCID: PMC5984113          DOI: 10.1177/0193945917749481

Source DB:  PubMed          Journal:  West J Nurs Res        ISSN: 0193-9459            Impact factor:   1.967


  20 in total

Review 1.  Electronic data capture for registries and clinical trials in orthopaedic surgery: open source versus commercial systems.

Authors:  Jatin Shah; Dimple Rajgor; Shreyasee Pradhan; Mariana McCready; Amrapali Zaveri; Ricardo Pietrobon
Journal:  Clin Orthop Relat Res       Date:  2010-10       Impact factor: 4.176

2.  Use of the National Heart, Lung, and Blood Institute Data Repository.

Authors:  Sean A Coady; George A Mensah; Elizabeth L Wagner; Miriam E Goldfarb; Denise M Hitchcock; Carol A Giffen
Journal:  N Engl J Med       Date:  2017-03-29       Impact factor: 91.245

3.  University of California, San Francisco International Nursing Network for HIV/AIDS Research.

Authors:  W L Holzemer
Journal:  Int Nurs Rev       Date:  2007-09       Impact factor: 2.871

4.  Procurement of shared data instruments for Research Electronic Data Capture (REDCap).

Authors:  Jihad S Obeid; Catherine A McGraw; Brenda L Minor; José G Conde; Robert Pawluk; Michael Lin; Janey Wang; Sean R Banks; Sheree A Hemphill; Rob Taylor; Paul A Harris
Journal:  J Biomed Inform       Date:  2012-11-10       Impact factor: 6.317

5.  Predictors of willingness to use a smartphone for research in underserved persons living with HIV.

Authors:  Rebecca Schnall; Hwayoung Cho; Allison Webel
Journal:  Int J Med Inform       Date:  2017-01-04       Impact factor: 4.046

6.  Nursing Needs Big Data and Big Data Needs Nursing.

Authors:  Patricia Flatley Brennan; Suzanne Bakken
Journal:  J Nurs Scholarsh       Date:  2015-08-19       Impact factor: 3.176

7.  Advancing Symptom Science Through Use of Common Data Elements.

Authors:  Nancy S Redeker; Ruth Anderson; Suzanne Bakken; Elizabeth Corwin; Sharron Docherty; Susan G Dorsey; Margaret Heitkemper; Donna Jo McCloskey; Shirley Moore; Carol Pullen; Bruce Rapkin; Rachel Schiffman; Drenna Waldrop-Valverde; Patricia Grady
Journal:  J Nurs Scholarsh       Date:  2015-08-06       Impact factor: 3.176

8.  Effectiveness of a Smartphone application and wearable device for weight loss in overweight or obese primary care patients: protocol for a randomised controlled trial.

Authors:  Esther Granado-Font; Gemma Flores-Mateo; Mar Sorlí-Aguilar; Xavier Montaña-Carreras; Carme Ferre-Grau; Maria-Luisa Barrera-Uriarte; Eulàlia Oriol-Colominas; Cristina Rey-Reñones; Iolanda Caules; Eva-María Satué-Gracia
Journal:  BMC Public Health       Date:  2015-06-04       Impact factor: 3.295

Review 9.  A systematic review of barriers to data sharing in public health.

Authors:  Willem G van Panhuis; Proma Paul; Claudia Emerson; John Grefenstette; Richard Wilder; Abraham J Herbst; David Heymann; Donald S Burke
Journal:  BMC Public Health       Date:  2014-11-05       Impact factor: 3.295

10.  Protecting patient privacy when sharing patient-level data from clinical trials.

Authors:  Katherine Tucker; Janice Branson; Maria Dilleen; Sally Hollis; Paul Loughlin; Mark J Nixon; Zoë Williams
Journal:  BMC Med Res Methodol       Date:  2016-07-08       Impact factor: 4.615

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  1 in total

Review 1.  Clinical decision support systems in orthodontics: A narrative review of data science approaches.

Authors:  Najla Al Turkestani; Jonas Bianchi; Romain Deleat-Besson; Celia Le; Li Tengfei; Juan Carlos Prieto; Marcela Gurgel; Antonio C O Ruellas; Camila Massaro; Aron Aliaga Del Castillo; Karine Evangelista; Marilia Yatabe; Erika Benavides; Fabiana Soki; Winston Zhang; Kayvan Najarian; Jonathan Gryak; Martin Styner; Jean-Christophe Fillion-Robin; Beatriz Paniagua; Reza Soroushmehr; Lucia H S Cevidanes
Journal:  Orthod Craniofac Res       Date:  2021-05-24       Impact factor: 1.826

  1 in total

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