Literature DB >> 29251778

Advance care planning (ACP) for specialists managing cirrhosis: A focus on patient-centered care.

Amanda Brisebois1,2, Kathleen P Ismond3,4, Michelle Carbonneau5,6, Jan Kowalczewski7, Puneeta Tandon3,4,6.   

Abstract

Advance care planning (ACP) and goals of care designation (GCD) are being integrated into modern health care. In cirrhosis, uptake and adoption of these practices have been limited with physicians citing many perceived barriers and limitations. Recognizing the many tangible benefits of ACP and GCD processes in patients with life-limiting chronic diseases, the onus is on health practitioners to initiate and direct these conversations with their patients and surrogates. Drawing upon the literature and our experiences in palliative care and cirrhosis, we provide an actionable framework that can be readily implemented into a busy clinical setting by a practitioner. Conversation starters, visual aids, educational resources (for patients and practitioners), and videos of mock physician-patient scenarios are presented and discussed. Importantly, we have customized each of these tools to meet the unique health care needs of patients with cirrhosis. The inherent flexibility of our approach to ACP discussions and GCD can be further modified to accommodate practitioner preferences.
CONCLUSION: In our clinics, this assemblage of "best practice tools" has been well received by patients and surrogates enabling us to increase the number of outpatients with cirrhosis who have actively contributed to their GCD before acute health events and are supported by well-informed surrogates. (Hepatology 2018;67:2025-2040).
© 2017 by the American Association for the Study of Liver Diseases.

Entities:  

Mesh:

Year:  2018        PMID: 29251778     DOI: 10.1002/hep.29731

Source DB:  PubMed          Journal:  Hepatology        ISSN: 0270-9139            Impact factor:   17.425


  8 in total

1.  Physicians' Perspectives on Palliative Care for Patients With End-Stage Liver Disease: A National Survey Study.

Authors:  Nneka N Ufere; John Donlan; Lauren Waldman; Arpan Patel; Jules L Dienstag; Lawrence S Friedman; Kathleen E Corey; Nikroo Hashemi; Peter Carolan; Alan C Mullen; Michael Thiim; Irun Bhan; Ryan Nipp; Joseph Greer; Jennifer Temel; Raymond T Chung; Areej El-Jawahri
Journal:  Liver Transpl       Date:  2019-05-03       Impact factor: 5.799

2.  Barriers to Use of Palliative Care and Advance Care Planning Discussions for Patients With End-Stage Liver Disease.

Authors:  Nneka N Ufere; John Donlan; Lauren Waldman; Jules L Dienstag; Lawrence S Friedman; Kathleen E Corey; Nikroo Hashemi; Peter Carolan; Alan C Mullen; Michael Thiim; Irun Bhan; Ryan Nipp; Joseph A Greer; Jennifer S Temel; Raymond T Chung; Areej El-Jawahri
Journal:  Clin Gastroenterol Hepatol       Date:  2019-03-15       Impact factor: 11.382

3.  Advance Care Planning and Goals of Care Discussions in Advanced Liver Disease.

Authors:  Nneka N Ufere
Journal:  Curr Hepatol Rep       Date:  2021-07-21

4.  Transjugular intrahepatic portosystemic shunt for the treatment of refractory ascites: A population-based cohort study.

Authors:  Jeffrey M Mah; Maya Djerboua; Patti A Groome; Christopher M Booth; Jennifer A Flemming
Journal:  Can Liver J       Date:  2020-11-17

Review 5.  Palliative care in liver disease: what does good look like?

Authors:  Hazel Woodland; Ben Hudson; Karen Forbes; Anne McCune; Mark Wright
Journal:  Frontline Gastroenterol       Date:  2019-09-10

Review 6.  Thinking Ahead: Advance Care Planning for Patients With Cirrhosis.

Authors:  Lisa X Deng; Michele M Tana; Jennifer C Lai
Journal:  Clin Liver Dis (Hoboken)       Date:  2021-09-13

7.  Low Rates of Advance Care Planning (ACP) Discussions Despite Readiness to Engage in ACP Among Liver Transplant Candidates.

Authors:  Connie W Wang; Adrienne Lebsack; Rebecca L Sudore; Jennifer C Lai
Journal:  Dig Dis Sci       Date:  2020-06-04       Impact factor: 3.199

8.  Measuring the Quality of Palliative Care for Patients with End-Stage Liver Disease.

Authors:  Arpan Patel; Steven Asch; Anna Liza Antonio; Fasiha Kanwal; Karl Lorenz; Deborah Riopelle; Anna Dickey; Jennifer Larkin; Martin Lee; Anne Walling
Journal:  Dig Dis Sci       Date:  2020-01-11       Impact factor: 3.199

  8 in total

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