Literature DB >> 29248420

Understanding Health Literacy for People Living With HIV: Locations of Learning.

Teri G Lindgren, Darcel Reyes, Lucille Eller, Dean Wantland, Carmen Portillo, William L Holzemer, Ellah Matshediso, Inge Corless, Jeanne Kemppainen, K Dintle Mogobe, Allison Webel, Kathleen Nokes, Patrice Nicholas, Marta Rivero Mendez, Paula Reid, Solymar Solis Baez, Mallory O Johnson, Yvette Cuca, Carol Dawson Rose.   

Abstract

Health literacy, including people's abilities to access, process, and comprehend health-related information, has become an important component in the management of complex and chronic diseases such as HIV infection. Clinical measures of health literacy that focus on patients' abilities to follow plans of care ignore the multidimensionality of health literacy. Our thematic analysis of 28 focus groups from a qualitative, multisite, multinational study exploring information practices of people living with HIV (PLWH) demonstrated the importance of location as a dimension of health literacy. Clinical care and conceptual/virtual locations (media/Internet and research studies) were used by PLWH to learn about HIV and how to live successfully with HIV. Nonclinical spaces where PLWH could safely discuss issues such as disclosure and life problems were noted. Expanding clinical perspectives of health literacy to include location, assessing the what and where of learning, and trusted purveyors of knowledge could help providers improve patient engagement in care.
Copyright © 2017 Association of Nurses in AIDS Care. Published by Elsevier Inc. All rights reserved.

Entities:  

Keywords:  HIV; health literacy; information practices; learning settings; qualitative research

Mesh:

Year:  2017        PMID: 29248420      PMCID: PMC5816695          DOI: 10.1016/j.jana.2017.10.007

Source DB:  PubMed          Journal:  J Assoc Nurses AIDS Care        ISSN: 1055-3290            Impact factor:   1.354


  15 in total

Review 1.  Health literacy and health actions: a review and a framework from health psychology.

Authors:  Christian von Wagner; Andrew Steptoe; Michael S Wolf; Jane Wardle
Journal:  Health Educ Behav       Date:  2008-08-26

2.  What information counts at the moment of practice? Information practices of renal nurses.

Authors:  Ann Bonner; Annemaree Lloyd
Journal:  J Adv Nurs       Date:  2011-03-07       Impact factor: 3.187

3.  Engaging African American Faith-Based Organizations in Adolescent HIV Prevention.

Authors:  Briana A Woods-Jaeger; Mamie Carlson; Tamara Taggart; Linda Riggins; Alexandra F Lightfoot; Melvin R Jackson
Journal:  J Relig Health       Date:  2015-08

4.  Evaluation of HeartSmarts, a Faith-Based Cardiovascular Health Education Program.

Authors:  Naa-Solo Tettey; Pedro A Duran; Holly S Andersen; Carla Boutin-Foster
Journal:  J Relig Health       Date:  2017-02

5.  Seeking information about HIV/AIDS: a qualitative study of health literacy among people living with HIV/AIDS in a low prevalence context.

Authors:  Ann P Zukoski; Sheryl Thorburn; Josh Stroud
Journal:  AIDS Care       Date:  2011-06-14

6.  Randomized clinical trial of HIV treatment adherence counseling interventions for people living with HIV and limited health literacy.

Authors:  Seth C Kalichman; Chauncey Cherry; Moira O Kalichman; Christina Amaral; Denise White; Tamar Grebler; Lisa A Eaton; Dean Cruess; Mervi A Detorio; Angela M Caliendo; Raymond F Schinazi
Journal:  J Acquir Immune Defic Syndr       Date:  2013-05-01       Impact factor: 3.731

7.  Prevalence of Diagnosed and Undiagnosed HIV Infection--United States, 2008-2012.

Authors:  H Irene Hall; Qian An; Tian Tang; Ruiguang Song; Mi Chen; Timothy Green; Jian Kang
Journal:  MMWR Morb Mortal Wkly Rep       Date:  2015-06-26       Impact factor: 17.586

8.  Building Trust and Relationships Between Patients and Providers: An Essential Complement to Health Literacy in HIV Care.

Authors:  Carol Dawson-Rose; Yvette P Cuca; Allison R Webel; Solymar S Solís Báez; William L Holzemer; Marta Rivero-Méndez; Lucille Sanzero Eller; Paula Reid; Mallory O Johnson; Jeanne Kemppainen; Darcel Reyes; Kathleen Nokes; Patrice K Nicholas; Ellah Matshediso; Keitshokile Dintle Mogobe; Motshedisi B Sabone; Esther I Ntsayagae; Sheila Shaibu; Inge B Corless; Dean Wantland; Teri Lindgren
Journal:  J Assoc Nurses AIDS Care       Date:  2016-03-22       Impact factor: 1.354

9.  Health literacy predicts participant understanding of orally-presented informed consent information.

Authors:  Raymond L Ownby; Amarilis Acevedo; Kenneth Goodman; Joshua Caballero; Drenna Waldrop-Valverde
Journal:  Clin Res Trials       Date:  2015-04-19

10.  Language and Culture in Health Literacy for People Living with HIV: Perspectives of Health Care Providers and Professional Care Team Members.

Authors:  Keitshokile Dintle Mogobe; Sheila Shaibu; Ellah Matshediso; Motshedisi Sabone; Esther Ntsayagae; Patrice K Nicholas; Carmen J Portillo; Inge B Corless; Carol Dawson Rose; Mallory O Johnson; Allison Webel; Yvette Cuca; Marta Rivero-Méndez; Solymar S Solís Báez; Kathleen Nokes; Darcel Reyes; Jeanne Kemppainen; Paula Reid; Lucille Sanzero Eller; Teri Lindgren; William L Holzemer; Dean Wantland
Journal:  AIDS Res Treat       Date:  2016-06-02
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  3 in total

1.  Patient Perspectives to Inform a Health Literacy Educational Program: A Systematic Review and Thematic Synthesis of Qualitative Studies.

Authors:  Margot Jager; Janine de Zeeuw; Janne Tullius; Roberta Papa; Cinzia Giammarchi; Amanda Whittal; Andrea F de Winter
Journal:  Int J Environ Res Public Health       Date:  2019-11-05       Impact factor: 3.390

2.  The role of trust and health literacy in nurse-delivered point-of-care STI testing for pregnant women living with HIV, Tshwane District, South Africa.

Authors:  Andrew Medina-Marino; Katherine Glockner; Emily Grew; Lindsey De Vos; Dawie Olivier; Jeffrey Klausner; Joseph Daniels
Journal:  BMC Public Health       Date:  2020-04-28       Impact factor: 3.295

3.  Health Literacy in Multiple Sclerosis patients: A Concept Analysis Using the Evolutionary Method.

Authors:  Ali Dehghani
Journal:  J Caring Sci       Date:  2021-03-01
  3 in total

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