Tanya L Packer1, America Fracini2, Åsa Audulv3, Neda Alizadeh4, Betsie G I van Gaal5, Grace Warner6, George Kephart7. 1. School of Occupational Therapy, Dalhousie University, Halifax, Canada; Radboud University Radboud university medical center, Radboud Institute for Health Sciences, IQ healthcare, Nijmegen, The Netherlands; Faculty of Health and Social Studies, Han University of Applied Sciences, Nijmegen, The Netherlands. Electronic address: tanya.packer@dal.ca. 2. School of Occupational Therapy, Dalhousie University, Halifax, Canada. Electronic address: acfracini@dal.ca. 3. Department of Nursing Science, Mid Sweden University, Sundsvall, Sweden. Electronic address: asa.audulv@miun.se. 4. School of Occupational Therapy, Dalhousie University, Halifax, Canada. Electronic address: neda.alizadeh@dal.ca. 5. Radboud University Radboud university medical center, Radboud Institute for Health Sciences, IQ healthcare, Nijmegen, The Netherlands; Faculty of Health and Social Studies, Han University of Applied Sciences, Nijmegen, The Netherlands. Electronic address: Betsie.vanGaal@radboudumc.nl. 6. School of Occupational Therapy, Dalhousie University, Halifax, Canada. Electronic address: grace.warner@dal.ca. 7. Department of Community Health and Epidemiology, Dalhousie University, Halifax, Nova Scotia, Canada. Electronic address: george.kephart@dal.ca.
Abstract
OBJECTIVES: To identify self-report, self-management measures for adults with chronic conditions, and describe their purpose, theoretical foundation, dimensionality (multi versus uni), and scope (generic versus condition specific). METHODS: A search of four databases (8479 articles) resulted in a scoping review of 28 self-management measures. RESULTS: Although authors identified tools as measures of self-management, wide variation in constructs measured, purpose, and theoretical foundations existed. Subscales on 13 multidimensional tools collectively measure domains of self-management relevant to clients, however no one tool's subscales cover all domains. CONCLUSIONS: Viewing self-management as a complex, multidimensional whole, demonstrated that existing measures assess different, related aspects of self-management. Activities and social roles, though important to patients, are rarely measured. Measures with capacity to quantify and distinguish aspects of self-management may promote tailored patient care. PRACTICE IMPLICATIONS: In selecting tools for research or assessment, the reason for development, definitions, and theories underpinning the measure should be scrutinized. Our ability to measure self-management must be rigorously mapped to provide comprehensive and system-wide care for clients with chronic conditions. Viewing self-management as a complex whole will help practitioners to understand the patient perspective and their contribution in supporting each individual patient.
OBJECTIVES: To identify self-report, self-management measures for adults with chronic conditions, and describe their purpose, theoretical foundation, dimensionality (multi versus uni), and scope (generic versus condition specific). METHODS: A search of four databases (8479 articles) resulted in a scoping review of 28 self-management measures. RESULTS: Although authors identified tools as measures of self-management, wide variation in constructs measured, purpose, and theoretical foundations existed. Subscales on 13 multidimensional tools collectively measure domains of self-management relevant to clients, however no one tool's subscales cover all domains. CONCLUSIONS: Viewing self-management as a complex, multidimensional whole, demonstrated that existing measures assess different, related aspects of self-management. Activities and social roles, though important to patients, are rarely measured. Measures with capacity to quantify and distinguish aspects of self-management may promote tailored patient care. PRACTICE IMPLICATIONS: In selecting tools for research or assessment, the reason for development, definitions, and theories underpinning the measure should be scrutinized. Our ability to measure self-management must be rigorously mapped to provide comprehensive and system-wide care for clients with chronic conditions. Viewing self-management as a complex whole will help practitioners to understand the patient perspective and their contribution in supporting each individual patient.
Authors: Lisa M Boucher; Esther S Shoemaker; Clare E Liddy; Lynne Leonard; Paul A MacPherson; Justin Presseau; Alana Martin; Dave Pineau; Christine Lalonde; Nic Diliso; Terry Lafleche; Michael Fitzgerald; Claire E Kendall Journal: Int J Qual Stud Health Well-being Date: 2022-12
Authors: George Kephart; Tanya Packer; Åsa Audulv; Yu-Ting Chen; Alysia Robinson; Ingrid Olsson; Grace Warner Journal: Qual Life Res Date: 2022-06-27 Impact factor: 3.440