Kerry L Gaskin1. 1. Children's Cardiac Unit, Birmingham Women's and Children's NHS Foundation Trust, Birmingham Children's Hospital, Steelhouse Lane, Birmingham B4 6NH, UK; Centre for Technology Enhanced Research, Coventry University, Priory Street, Coventry, CV1 5FB, UK; Advancing Clinical Practice, Allied Health & Social Sciences Department, University of Worcester, Henwick Grove, Worcester WR2 6AJ, UK. Electronic address: k.gaskin@worc.ac.uk.
Abstract
PURPOSE: The purpose of this study was to explore parents' experiences of one specific timepoint in their infant's journey: the transition from hospital to home, following the first stage of their infant's cardiac surgery for complex congenital heart disease. DESIGN AND METHODS: A prospective longitudinal mixed methods study, underpinned with Middle Range Transition Theory (Meleis, Sawyer, Im, Hilfinger Messias, & Schumacher, 2000). Face to face and telephone interviews were conducted and self-report forms completed by parents at four-time points: before discharge (T0), 2weeks after discharge (T1), 8weeks after discharge (T2) and after stage two surgery (T3). Interviews were transcribed verbatim before inductive thematic analysis. RESULTS: Parents were recruited over a 15-month period from 2013 to 2015. Twelve mothers and 4 fathers took part. The infants had functionally univentricular heart (left n=10, right n=1) and a systemic shunt dependent lesion, tetralogy of Fallot (n=1). Dynamic constructivist and constructionist social processes occurred for all parents, involving physical, physiological, psychological and cognitive elements within four 'patterns of experience', two of which 'safety and security' and 'love and support' are presented in this paper. IMPLICATIONS: Parental support is essential; parents need to be engaged in discharge planning process and given the opportunity to express their needs to ensure that discharge care is truly patient and family centered. CONCLUSIONS: Transition from hospital to home was complex and multi-faceted, with unanticipated physical and emotional transitions superimposed upon those that were expected.
PURPOSE: The purpose of this study was to explore parents' experiences of one specific timepoint in their infant's journey: the transition from hospital to home, following the first stage of their infant's cardiac surgery for complex congenital heart disease. DESIGN AND METHODS: A prospective longitudinal mixed methods study, underpinned with Middle Range Transition Theory (Meleis, Sawyer, Im, Hilfinger Messias, & Schumacher, 2000). Face to face and telephone interviews were conducted and self-report forms completed by parents at four-time points: before discharge (T0), 2weeks after discharge (T1), 8weeks after discharge (T2) and after stage two surgery (T3). Interviews were transcribed verbatim before inductive thematic analysis. RESULTS: Parents were recruited over a 15-month period from 2013 to 2015. Twelve mothers and 4 fathers took part. The infants had functionally univentricular heart (left n=10, right n=1) and a systemic shunt dependent lesion, tetralogy of Fallot (n=1). Dynamic constructivist and constructionist social processes occurred for all parents, involving physical, physiological, psychological and cognitive elements within four 'patterns of experience', two of which 'safety and security' and 'love and support' are presented in this paper. IMPLICATIONS: Parental support is essential; parents need to be engaged in discharge planning process and given the opportunity to express their needs to ensure that discharge care is truly patient and family centered. CONCLUSIONS: Transition from hospital to home was complex and multi-faceted, with unanticipated physical and emotional transitions superimposed upon those that were expected.
Authors: Marjorie A C P de Man; Elisabeth W Segers; Renske Schappin; Kees van der Leeden; Roelie M Wösten-van Asperen; Hans Breur; Carolina de Weerth; Agnes van den Hoogen Journal: Acta Paediatr Date: 2021-01-13 Impact factor: 2.299
Authors: Ólöf Kristjánsdóttir; Annica Sjöström-Strand; Gudrún Kristjánsdóttir Journal: Int J Environ Res Public Health Date: 2020-11-28 Impact factor: 3.390
Authors: Andrea J Chow; Ryan Iverson; Monica Lamoureux; Kylie Tingley; Isabel Jordan; Nicole Pallone; Maureen Smith; Zobaida Al-Baldawi; Pranesh Chakraborty; Jamie Brehaut; Alicia Chan; Eyal Cohen; Sarah Dyack; Lisa Jane Gillis; Sharan Goobie; Ian D Graham; Cheryl R Greenberg; Jeremy M Grimshaw; Robin Z Hayeems; Shailly Jain-Ghai; Ann Jolly; Sara Khangura; Jennifer J MacKenzie; Nathalie Major; John J Mitchell; Stuart G Nicholls; Amy Pender; Murray Potter; Chitra Prasad; Lisa A Prosser; Andreas Schulze; Komudi Siriwardena; Rebecca Sparkes; Kathy Speechley; Sylvia Stockler; Monica Taljaard; Mari Teitelbaum; Yannis Trakadis; Clara van Karnebeek; Jagdeep S Walia; Brenda J Wilson; Kumanan Wilson; Beth K Potter Journal: BMJ Open Date: 2022-02-22 Impact factor: 2.692