Literature DB >> 29206555

A Connectedness Primer for Healthcare Providers: Adolescents/Young Adult Cancer Survivors' Perspectives on Behaviors That Foster Connectedness During Cancer Treatment and the Resulting Positive Outcomes.

Celeste R Phillips1, Joan E Haase1.   

Abstract

PURPOSE: Many healthcare providers (HCPs) struggle to communicate and connect with adolescents and young adults (AYA) with cancer that hinders their ability to adequately assess and address the psychosocial needs of AYA. The purpose of this article is to describe the key behaviors of HCPs AYA perceive as essential to fostering connectedness with them and the outcomes AYA experience from such connectedness.
METHODS: The sample for this empirical phenomenological study was nine AYA cancer survivors (aged 20-23 years) who were diagnosed in adolescence. In-person individual interviews were conducted using a broad, data-generating question and analyzed using an adapted Colaizzi's method.
RESULTS: The key behaviors of HCPs AYA perceive as essential to fostering connectedness include (1) exhibiting characteristics of knowing how to connect; (2) being watchful and attentive to AYA needs; (3) displaying a willingness to foster the relationship; (4) using humor; and (5) conveying respect, support, and caring. Outcomes of connectedness for AYA include a sense of being cared about, understood, and respected as unique individuals. In addition, AYA experience a sense of confidence/comfort in expressing themselves to HCPs, anticipation of interacting with HCPs in the future, a sense of gratitude for HCPs, and enhanced well-being.
CONCLUSION: Findings highlight the specific behaviors HCPs can use to foster connectedness with AYA and the outcomes AYA experience from connectedness. Improving HCPs' ability to connect with AYA and maintain connectedness is essential to identifying and addressing the psychosocial needs of AYA. AYA-HCP connectedness may help reduce the psychosocial distress AYA experience during and after treatment.

Entities:  

Keywords:  psychosocial; quality of life; supportive care; survivorship

Mesh:

Year:  2017        PMID: 29206555      PMCID: PMC5899279          DOI: 10.1089/jayao.2017.0056

Source DB:  PubMed          Journal:  J Adolesc Young Adult Oncol        ISSN: 2156-5333            Impact factor:   2.223


  28 in total

1.  Health status of adolescent and young adult cancer survivors.

Authors:  Eric Tai; Natasha Buchanan; Julie Townsend; Temeika Fairley; Angela Moore; Lisa C Richardson
Journal:  Cancer       Date:  2012-06-11       Impact factor: 6.860

2.  Accuracy of assessment of distress, anxiety, and depression by physicians and nurses in adolescents recently diagnosed with cancer.

Authors:  Mariann Hedström; Anders Kreuger; Gustaf Ljungman; Peter Nygren; Louise von Essen
Journal:  Pediatr Blood Cancer       Date:  2006-06       Impact factor: 3.167

3.  The problem of rigor in qualitative research.

Authors:  M Sandelowski
Journal:  ANS Adv Nurs Sci       Date:  1986-04       Impact factor: 1.824

Review 4.  Identifying and addressing the needs of adolescents and young adults with cancer: summary of an Institute of Medicine workshop.

Authors:  Sharyl J Nass; Lynda K Beaupin; Wendy Demark-Wahnefried; Karen Fasciano; Patricia A Ganz; Brandon Hayes-Lattin; Melissa M Hudson; Brenda Nevidjon; Kevin C Oeffinger; Ruth Rechis; Lisa C Richardson; Nita L Seibel; Ashley W Smith
Journal:  Oncologist       Date:  2015-01-07

5.  Patient-health care provider communication during chemotherapy treatment: the perspectives of women with breast cancer.

Authors:  D A Bakker; M I Fitch; R Gray; E Reed; J Bennett
Journal:  Patient Educ Couns       Date:  2001-04

6.  Professional boundaries in the physician-patient relationship.

Authors:  G O Gabbard; C Nadelson
Journal:  JAMA       Date:  1995-05-10       Impact factor: 56.272

7.  Connectedness in the context of patient-provider relationships: a concept analysis.

Authors:  Celeste R Phillips-Salimi; Joan E Haase; Wendy Carter Kooken
Journal:  J Adv Nurs       Date:  2011-07-20       Impact factor: 3.187

8.  "Cancer sucks," and other ponderings by adolescent and young adult cancer survivors.

Authors:  Brad Zebrack; Erin E Kent; Theresa H M Keegan; Ikuko Kato; Ashley Wilder Smith
Journal:  J Psychosoc Oncol       Date:  2014

9.  Living with chronic illness: a phenomenological study of the health effects of the patient-provider relationship.

Authors:  Sylvia Fox; Catherine Chesla
Journal:  J Am Acad Nurse Pract       Date:  2008-03

10.  Connecting with healthcare providers at diagnosis: adolescent/young adult cancer survivors' perspectives.

Authors:  Celeste R Phillips; Joan E Haase; Marion E Broome; Janet S Carpenter; Richard M Frankel
Journal:  Int J Qual Stud Health Well-being       Date:  2017-12
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  4 in total

1.  Balancing Hope and Risk Among Adolescent and Young Adult Cancer Patients with Late-Stage Cancer: A Qualitative Interview Study.

Authors:  Marlaine Figueroa Gray; Evette J Ludman; Tara Beatty; Abby R Rosenberg; Karen J Wernli
Journal:  J Adolesc Young Adult Oncol       Date:  2018-08-10       Impact factor: 2.223

2.  Like Prisoners in a War Camp: Adolescents and Young Adult Cancer Survivors' Perspectives of Disconnectedness From Healthcare Providers During Cancer Treatment.

Authors:  Celeste R Phillips; Joan E Haase
Journal:  Cancer Nurs       Date:  2020 Jan/Feb       Impact factor: 2.592

3.  Adolescents and Young Adults with Cancer Using a Symptom Heuristics App: Provider Perceptions and Actions.

Authors:  Catherine Fiona Macpherson; Kristin Stegenga; Jeanne M Erickson; Lauri A Linder; Amy R Newman; Ronald K Elswick; John Charlson; Stefanie Thomas; Suzanne Ameringer
Journal:  J Adolesc Young Adult Oncol       Date:  2020-04-23       Impact factor: 1.757

4.  Adaptation of the Youth Connectedness to Provider scale to assess the relationship between health professionals and adolescent and young adult patients.

Authors:  Gabriela Nogueira Pavan; Luisa F Roselli; Lilia D'Souza-Li
Journal:  J Pediatr (Rio J)       Date:  2020-02-24       Impact factor: 2.990

  4 in total

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