Literature DB >> 29205699

Use of telehealth in the delivery of comprehensive care for patients with haemophilia and other inherited bleeding disorders.

R Kulkarni1.   

Abstract

Advances in technology such as telemedicine (TM) have made access to cost-effective, quality health care feasible for remote patients. TM is especially well suited for patients with chronic disorders such as haemophilia and related haemostatic disorders that benefit not only from more frequent interaction with care providers at a specialized haemophilia treatment center but also from consultations with other specialists. Telehealth refers to a broader application of TM and includes non-clinical services such as education, provider training, administrative meetings etc. Collaboration with the local primary care provider for management and implementation is key for successful and sustainable TM. This review article provides an overview of types of telemedicine, technical aspects, its benefits and challenges and focuses on the applicability of this technology to persons with bleeding and other blood disorders. Examples of TM strategies, process flow of TM clinic and experiences at the authors haemophilia treatment center (HTC) setting are shared. In addition, mobile health (mHealth) and electronic health (eHealth), both a part of telehealth, and their applications are briefly described. Clearly, widespread adoption of this technology will not only enhance care of patients but will enable more people, especially in underserved areas, to receive specialty care.
© 2017 John Wiley & Sons Ltd.

Entities:  

Keywords:  comprehensive care; haemophilia; haemostatic disorders; hemophilia treatment center; outreach; telehealth; telemedicine

Mesh:

Year:  2017        PMID: 29205699     DOI: 10.1111/hae.13364

Source DB:  PubMed          Journal:  Haemophilia        ISSN: 1351-8216            Impact factor:   4.287


  14 in total

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Authors:  Elena A Boccalandro; Giuseppe Dallari; Pier Mannuccio Mannucci
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2.  A Blended Physiotherapy Intervention for Persons With Hemophilic Arthropathy: Development Study.

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Journal:  J Med Internet Res       Date:  2020-06-19       Impact factor: 5.428

Review 3.  Telehealth Interventions for Improving Self-Management in Patients With Hemophilia: Scoping Review of Clinical Studies.

Authors:  Wenji Qian; Teddy Tai-Ning Lam; Henry Hon Wai Lam; Chi-Kong Li; Yin Ting Cheung
Journal:  J Med Internet Res       Date:  2019-07-10       Impact factor: 5.428

4.  Patient's Perspectives of Telepsychiatry: The Past, Present and Future.

Authors:  Shalini S Naik; Narayana Manjunatha; Channaveerachari Naveen Kumar; Suresh Bada Math; Sydney Moirangthem
Journal:  Indian J Psychol Med       Date:  2020-11-01

Review 5.  Telemedicine in Malignant and Nonmalignant Hematology: Systematic Review of Pediatric and Adult Studies.

Authors:  Aashaka C Shah; Linda C O'Dwyer; Sherif M Badawy
Journal:  JMIR Mhealth Uhealth       Date:  2021-07-08       Impact factor: 4.773

6.  Registry of patients with congenital bleeding disorders and COVID-19 in Madrid.

Authors:  María Teresa Álvarez Román; Nora Butta Coll; Sara García Barcenilla; Lourdes Pérez González; Ivan de la Plaza Collazo; Hortensia De la Corte Rodríguez; Jose A Romero Garrido; Monica Martín Salces; María Isabel Rivas Pollmar; Tamara Cebanu; Elena González-Zorrilla; Paula Acuña; Elena Monzón Manzano; Emérito Carlos Rodríguez Merchán; Roberto Trelles Martínez; María J Blanco Bañares; Mar Gutiérrez Alvariño; Victor Jiménez Yuste
Journal:  Haemophilia       Date:  2020-08-03       Impact factor: 4.263

7.  Telemedicine: An Innovative Twist to Primary Health Care in Rural Bangladesh.

Authors:  Md Hafiz Iqbal
Journal:  J Prim Care Community Health       Date:  2020 Jan-Dec

8.  Telemedicine use by pediatric rheumatologists during the COVID-19 pandemic.

Authors:  Rajdeep Pooni; Tova Ronis; Tzielan Lee
Journal:  Pediatr Rheumatol Online J       Date:  2021-06-16       Impact factor: 3.054

9.  COVID-19 and telemedicine in haemophilia in a patient with severe haemophilia A and orthopaedic surgery.

Authors:  María Teresa Álvarez-Román; Hortensia De la Corte-Rodríguez; Emérito Carlos Rodríguez-Merchán; Mónica Martín-Salces; María Isabel Rivas-Pollmar; Nora V Butta; Sara García-Barcenilla; Paula Acuña; Tamara Cebanu; Elena González; María Elena Monzón-Manzano; Víctor Jiménez-Yuste
Journal:  Haemophilia       Date:  2020-11-03       Impact factor: 4.263

10.  The role of telemedicine in the delivery of health care in the COVID-19 pandemic.

Authors:  Leonard A Valentino; Mark W Skinner; Steven W Pipe
Journal:  Haemophilia       Date:  2020-07-22       Impact factor: 4.263

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