Timmy Li1,2, M Katherine Dokus3,4, Kristin N Kelly3, Nene Ugoeke1, James R Rogers5, George Asham1,6, Venkatesh Abhishek Sharma4,5, Dominic J Cirillo1, Mary K Robinson4,7, Erika K Venniro4,7, Jeremy G Taylor4,7, Mark S Orloff3,4, Scott McIntosh1, Randeep Kashyap3,4. 1. 1 Department of Public Health Sciences, University of Rochester Medical Center, Rochester, NY, USA. 2. 2 Department of Emergency Medicine, University of Rochester Medical Center, Rochester, NY, USA. 3. 3 Department of Surgery, University of Rochester Medical Center, Rochester, NY, USA. 4. 4 Center for Transplantation, University of Rochester Medical Center, Rochester, NY, USA. 5. 5 College of Arts and Sciences, University of Rochester, Rochester, NY, USA. 6. 6 Department of Cell Biology and Neuroscience, Rutgers University, New Brunswick, NJ, USA. 7. 7 Department of Nephrology, University of Rochester Medical Center, Rochester, NY, USA.
Abstract
INTRODUCTION: Understanding living organ donors' experience with donation and challenges faced during the process is necessary to guide the development of effective strategies to maximize donor benefit and increase the number of living donors. METHODS: An anonymous self-administered survey, specifically designed for this population based on key informant interviews, was mailed to 426 individuals who donated a kidney or liver at our institution. Quantitative and qualitative methods including open and axial coding were used to analyze donor responses. FINDINGS: Of the 141 survey respondents, 94% would encourage others to become donors; however, nearly half (44%) thought the donation process could be improved and offered numerous suggestions. Five major themes arose: (1) desire for greater convenience in testing and scheduling; (2) involvement of previous donors throughout the process; (3) education and promotion of donation through social media; (4) unanticipated difficulties, specifically pain; and (5) financial concerns. DISCUSSION: Donor feedback has been translated into performance improvements at our hospital, many of which are applicable to other institutions. Population-specific survey development helps to identify vital patient concerns and provides valuable feedback to enhance the delivery of care.
INTRODUCTION: Understanding living organ donors' experience with donation and challenges faced during the process is necessary to guide the development of effective strategies to maximize donor benefit and increase the number of living donors. METHODS: An anonymous self-administered survey, specifically designed for this population based on key informant interviews, was mailed to 426 individuals who donated a kidney or liver at our institution. Quantitative and qualitative methods including open and axial coding were used to analyze donor responses. FINDINGS: Of the 141 survey respondents, 94% would encourage others to become donors; however, nearly half (44%) thought the donation process could be improved and offered numerous suggestions. Five major themes arose: (1) desire for greater convenience in testing and scheduling; (2) involvement of previous donors throughout the process; (3) education and promotion of donation through social media; (4) unanticipated difficulties, specifically pain; and (5) financial concerns. DISCUSSION: Donor feedback has been translated into performance improvements at our hospital, many of which are applicable to other institutions. Population-specific survey development helps to identify vital patient concerns and provides valuable feedback to enhance the delivery of care.
Entities:
Keywords:
living donor transplant; patient satisfaction; quality improvement; survey studies
Authors: Douglas B Mogul; Joy Lee; Tanjala S Purnell; Allan B Massie; Tanveen Ishaque; Dorry L Segev; John F P Bridges Journal: Pediatr Transplant Date: 2019-06-19
Authors: Steven Habbous; Justin Woo; Ngan N Lam; Krista L Lentine; Matthew Cooper; Marian Reich; Amit X Garg Journal: Transplant Direct Date: 2018-09-20