Amparo Solé1, Casilda Olveira2, Ines Pérez3, David Hervás4, Vincent Valentine5, Anick N Baca Yepez6, Gabriel Olveira7, Alexandra L Quittner8. 1. Adult CF and Lung Transplant Unit, University Hospital la Fe, University of Valencia, Valencia, Spain. Electronic address: sole_amp@gva.es. 2. UGC de Enfermedades Respiratorias, Hospital Regional Universitario / Universidad de Málaga, Instituto de Investigación Biomédica de Málaga, Spain. Electronic address: casi1547@separ.es. 3. Lung Transplant and Cystic Fibrosis, Medical Research Institute La Fe, IIS La Fe, Spain. Electronic address: perez_carmun@gva.es. 4. Medical Research Institute La Fe, IIS La Fe, Valencia, Spain. Electronic address: bioestadistica@iislafe.es. 5. Department of Medicine, University of Alabama Hospital, Birmingham, AL, USA. Electronic address: vvalentine@uabmc.eu. 6. University of Valencia, Spain. Electronic address: abaye@alumni.uv.es. 7. UGC de Endocrinología y Nutrición, Hospital Regional Universitario/Universidad de Málaga, Instituto de Investigación Biomédica de Málaga, Spain. Electronic address: gabrielm.olveira.sspa@juntadeandalucia.es. 8. Department of Psychology, University of Miami, Coral Gables, FL, USA.
Abstract
BACKGROUND: The Cystic Fibrosis Questionnaire-Revised (CFQ-R+14) is a disease-specific, health-related quality of life instrument for cystic fibrosis (CF) patients ≥14years. We have developed a Spanish electronic version of the CFQ-R (e-CFQ-R+14 Spain). Our aim was to compare the paper and electronic versions and to validate the electronic version. METHODS: Fifty CF patients completed the study. All answered the paper and electronic versions on day 1 and repeated the e-CFQR version 15days later. RESULTS: Concordance between the electronic and paper copy versions was high, with correlations above 0.9 in all domains. Test-retest reliability of the e-CFQ-R results was strong, with coefficients ranging from 0.8 to 0.9. CONCLUSIONS: The e-CFQ-R version is reliable and valid and can replace the paper copy, thus simplifying the assessment of quality of life. It also provides immediate results with no errors in scoring. It is a useful new tool in CF care.
BACKGROUND: The Cystic Fibrosis Questionnaire-Revised (CFQ-R+14) is a disease-specific, health-related quality of life instrument for cystic fibrosis (CF) patients ≥14years. We have developed a Spanish electronic version of the CFQ-R (e-CFQ-R+14 Spain). Our aim was to compare the paper and electronic versions and to validate the electronic version. METHODS: Fifty CFpatients completed the study. All answered the paper and electronic versions on day 1 and repeated the e-CFQR version 15days later. RESULTS: Concordance between the electronic and paper copy versions was high, with correlations above 0.9 in all domains. Test-retest reliability of the e-CFQ-R results was strong, with coefficients ranging from 0.8 to 0.9. CONCLUSIONS: The e-CFQ-R version is reliable and valid and can replace the paper copy, thus simplifying the assessment of quality of life. It also provides immediate results with no errors in scoring. It is a useful new tool in CF care.